I have stage 3 Sarcoma cancer and where it is located is very rare; it is in my face. I had surgery about 7 weeks ago. They had to open up the left side of my face and take out my pallet. The surgeons took out the tumor and it was 5.5cc, which is very big. This all happened so fast. On January 3rd, I was thinking my surgery was to remove a cyst. Then I found out it was not a cyst, so I ended up getting every single scan out there. I went in for my main surgery on February 10th.
I’m learning how to do things like simply swallow and working on my speech, because I’m trying to get a new pallet made. And then of course the back and forth to the hospital all the time. I live about 2 hours away from the hospital. Now I will be starting radiation for 7 weeks Monday through Friday. I will most likely lose my left eye sight.
People are kind and say ‘whatever you need, let me know’, but when it does come down to it, those good intentions seem to fade away. But that is okay because I know everyone has their own things going on. I am self employed and that does not make it easy, because it is not like I still receive a pay check. I have a small business, so now my finances are going to hell and back. I’m just trying to get my story out there and let people know how fast something can happen. Not only cancer but your job, family, friends, and your everyday life; it all just changes in a flash!!! I am getting a brain scan this week also. I feel like I really have no one to talk to.Friends say ‘well vent to me’, but I do not want to always be the ”downer” in a conversation. Sometimes I just have these breakdowns and cannot stop crying and I ask ‘really? why???’. I am a good person and I love my job, friends and family. I belong to a great church and yet everything has changed. I have so many questions about this cancer but it is so rare. I really do not have a lot of answers from the doctors. My looks have changed also. My left side is still swollen and my eye drops down. My lip lifted up on the left side from stitches and my ‘new’ pallet is still not correct yet. So not to be vain, but it is just another ‘change’ in my life.
You may be asking, did they get the cancer? There are still some small cells in the wall and that is why I am doing radiation. I would like to find or start some kind of support group in my area. So much more I could go in to, but I am done for now. I hope this will help someone out and let you know you are not alone in this!!!!!
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This article is intended to convey general educational information and should not be relied upon as a substitute for professional healthcare advice.