I was just recently diagnosed with JME last month. About 6 months ago, I started having what I called “jerks” right away in the morning. For a few months, it was just here and there I would get them, and now a couple of months ago, it turned into a daily thing. It got so bad, I was terrified of touching anything in the morning, and when it would happen, I would get upset or stressed out, which would just make it worse.
About 5 weeks ago, I went to the neurologist, and he had me get an EEG, which is how I was diagnosed with JME. I can no longer drive for up to a year. I am back on relying on my family to get my places, and it has been one of the hardest things to deal with. I consider myself lucky though. I have not yet had grand mal seizures, and ever since starting meds, I no longer get the jerks. It has helped me so much reading people’s stories the last few weeks, trying to figure out where I go from here. I hope to have people comment and hear more stories and hear what has helped others with going through what I am going through!
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.