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Emily’s Story (Epilepsy)

Purple Ribbon Epilepsy Story  Hi, my name is Emily and I have had epilepsy for 21 years of my life. The first time I had a seizure I was in 2nd grade and had no idea what was happening. As the years went by and I became an adult, the seizures kept on getting worse and worse. It got to the point that I was leaving work every other week on a dime. I also had no short-term memory unless it was something traumatic. I would sit and cry to my mom saying I can’t take this anymore. If I had a child there would be no way I would be able to take care of it. I also had doctors tell me ‘I don’t know how to help you’ – until I went to U of M hospital.  They were able to help by doing brain surgery. I had my surgery in October of 2009 and I have been seizure free for a year and a half. This was the best thing that could have happened to me. I now don’t leave work, I can drive, and my memory is a lot better. The only thing I lost was some peripheral vision, but I can live with that. I know there are people like me and I recommend this surgery if you have no other options.

Submitted 7-1-11

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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  1. Victoria Foeller

    I fight against mental illness, cancer and child abuse, we all need to love and respect each other!

  2. Robyn Johnson

    I recently started having seizures in my sleep about 2 years ago and I’m now 33. I woke up one morning in the back of an ambulance then I was told I had a seizure…”a seizure?” I didn’t even really know what one is besides what you hear and read about. I was terrified for myself and my children, the future was a whole new life. I eventually had to come to terms with being someone who took meds everyday. I’m constantly worried about how this may affect my future but I stay strong for my babies and take one day at a time. Life is always throwing challenges at us but we have to OVERCOME!

    • Emily

      I hope meds can keep your seizers under control. Just know there are people just like you, and if you have any questions or want to talk you can eamail me.

  3. kathleen mchugh

    im 50y/o,,seizure free 25yrs. cancer free 2yrs. i know the and believe,,for 3yrs i wasnt aloud to drive,,no job,,needed help food shoping, for 3kids,,,it sucked, stoned on meds for 10yrs,,i recovered and forgot about it,,until cancer reminded me,,hug those babies everyday your stuck home with them..keep looking foward and put your health above all else.

  4. Roni-Kay Lopez

    At 6 months old in a coma due to seizures, I was diagnosed with Epilepsy. My entire life has been medication, testing, EEG, CT, name it. After having a seizure behind the wheel of my car, I stopped and said this is enough. I went through testing, found out I was a candidate for a surgery, had it, and now have been seizure free for 4 years. SEIZE THE MOMENT and SPREAD AWARENESS…

  5. Elena

    I was diagnosed with complex partial in december 2012. They don’t know why but assume it is because of my two pregnancies I had eclampsia and mini strokes. The seizures just stuck with me. I am now 36, with 2 small kids and learning to dealing with this. Thank god I have a good husband, but this has been very hard. I was approved for a EpiDog/seizure dog. They have not found a medication that works I have been on 4 different ones. Any advice?

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