Thursday, October 6, 2022
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Stephanie’s Story (Endometriosis)

Stephanie's Story (Endometriosis) Hey, I’m Steph. At the age of 16 I was like any other girl. I had a great group of friends, was attending my 12th year at school, and was going out every weekend. This all changed the night before my first year 12 exam. I started feeling sick so went to bed early. That night I vomited twice so did not even try to attend my exam. From then on, I got worse. Later that day I was in utter pain in my lower abdomen area. Being home alone I lay on the couch until my mum came home and I told her I needed to go to ED. After arriving at ED, they could not figure out what was wrong with me so sent me home with Tramadol. The next day I was back in ED for what they thought was my appendix and I was rushed to the hospital in an ambulance. I spent about 5 days at the hospital drugged out of my mind because they couldn’t decide what was wrong with me. They finally decided to go in and have a look and they took out my slightly inflamed appendix, hoping that was the cause.

After recovering from my surgery, the pain came back worse than before and again we came and went from ED being given only panadol and ibuprofen for my pain! Finally, after about 3 visits to ED, someone mentioned the possibility of endometriosis. I had never heard that word before and it scared me to death.

By February of the next year I had my first appointment with my gynecologist who agreed it sounded like I was suffering from endometriosis. I was put on the 6-month waiting list for my surgery. During these 6 months, the pain was so bad I had to drop out of school. I could not go anywhere or do anything apart from lie on the couch. I lost all my friends because they couldn’t handle my pain. Things started to look up when I was put on the pill and told not to take the red pills (stopping me from getting my period), but I was still not well enough to walk to our mailbox down the drive. 6 months came and went and I hadn’t heard about my surgery. We rang the hospital only to find my surgery could be a year or more away. I couldn’t live like that anymore.

At this point, another option opened up for me when I reunited with an ex-boyfriend. He was a great support and eventually became my boyfriend again. After hearing the news of my surgery being prolonged even longer, we started contemplating trying for a baby. Thankfully, he more than willingly agreed and we started trying. I got pregnant within 2 months and am now 36 weeks pregnant with a little baby girl. I have had no pain during the pregnancy and can now not only walk to the mailbox but to the supermarket around the corner! If I had not tried for this baby I would still be waiting for my surgery. It’s been 18 months of waiting. So I am hoping this pregnancy helps me as much as it can and that I can be a great mother to the little girl I’m carrying.

New Zealand
Submitted 6-29-11

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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  1. C t1

    Horrible. Who will support the child. Do you get pregnant again because you won’t take care of infant in that much pain

  2. Angie

    I totally understand this. I was diagnosed with endometriosis when I was 13, by the time I was 18 I had delt with that for 5 years then suprise I go to the gynocologist for a yearly exam, my pap comes back abnormal so I went back in for more tests and it ended up being cervical cancer. I beat the cancer, got pregnant . My precnancy was the best time for me because I had NO PAIN and I felt really good. I had my daughter in September of 2004 and in July of 2007 my endometriosis had come back and they said it was worse then than before and they were afraid that my cancer would come back so I ahd a complete hysterectomy in July of 2007. Since then I feel great, my little girl will be 7 next week and things couldn’t be better. So I completly understand where your coming from on this.

  3. Tanya

    Hi I have every symptom of endometriosis and basically I am in so much pain I cannot do anything, I am having such a hard time finding a doctor who will do the surgery I have had to go to a different town. I am depressed and feel all my faith falling away. It is a lonley battle and effects all aspects of your life. Plus I am so tired it is hard to do anything. I see a new doctor on wed so I am praying she will do the surgery because not knowing 100% what is going on down there is terrifying. So if anyone has advice it would be appreciated.

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