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Deeann Elizabeth’s Story (CRPS)

Deeann's Story (RSD and CRPS)Deeann Elizabeth Pavlick. Battling reflex sympathetic dystrophy. Former proprietor of five interior decorating florist shops.

I was born in New Jersey, with an artistic quality in designing, which I used in my businesses. While attending floral and interior classes in Florida I also did freelance modeling. I attended John Robert Powers school in Philadelphia in 1988. I am finishing up my third children’s book, on top of publishing my fourth RSD/CRPS book, three French Country Magazines, and one styled by Deeannelizabeth Magazine. I am also doing an interior and floral design DVD. I look forward to my future and I hope the awareness of this disease will help others to strive on

Local Girl publishes about unknown disease. When was the last time someone tried to sell the idea of a book about RSD (Reflex Sympathetic Dystrophy)? In today’s world, regardless of race, career, gender, etc. RSD has no limit. So little is known about RSD, but so many more cases are being diagnosed. I have been preparing a book;  “Soul Searching: A Victim of Reflex Sympathetic Dystrophy, day and life of living with this crippling and emotional disease.”

Soul Searching, addresses anyone who has this disease and their families who just can’t comprehend what the patient is going through. Included in this book are well over four years of research on RSD with a broad range of quotations and details with a more approachable understanding of the disease. During my research in 1998 there were thousands of people in the United States that were diagnosed with RSD/CRPS and the numbers keep climbing. RSD/CRPS is a crippling nerve disease. When caught in time it can usually be maintained with treatment. If not, RSD/CRPS can cause paralysis in patients.

How have I become such an expert on this subject? I am a person who lives every day of my life with RSD. Clueless when I was diagnosed, but now on the road to recovery, though the symptoms still occur from RSD/CRPS. After reading “Soul Searching” you will understand the complexity of RSD/CRPS and the fear of this crippling disease.

Deeann Elizabeth
Pennsylvania
Submitted 09/23/2013

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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3 comments

  1. I have RSD and noone understands how painful it can be.

  2. I would like to get in contact with DeeAnn to get her story. Some of us RSDer’s are starting a new Facebook webpage with only POSITIVE stories. A site that is safe for teens and none of the boom and gloom. DeeAnn’s story could help many of us looking for the positives. As one with RSD know’s, researching it on the internet is overwhelming to say the least. It’s hard to find people that still have careers, and are working through it like myself. Any help would be greatly appreciated.

    Thank You,
    Tammy Gorski

  3. I am an RSD/ CRPS and recently breast cancer surviver . Living with pain everyday has been the norm since 2001. I have been blessed with supportive family and friends. I work a full time job and have understanding bosses.I fight like a girl and win everyday. Thank God.

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