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Cindy’s Story (Endometriosis)

Cindy's Story (Endo)I am 55 years old and have had endometriosis since I was 13. Like many young women I was told that the horrific cramps were normal, the pain was psychological, the pain was phantom, etc. The pain started just one day a month, then two to three, and then every day.

I have had multiple surgeries and treatments over the years and still live with daily pain. I can no longer work due to the pain. The worst pain of the whole disease is that the associated chronic pain isn’t understood or even recognized at times by the medical community and by my long-term disability insurance. It is as if I’m lying, making it all up, drug seeking, etc. As if I have gone through six or so surgeries, pain doctors, physical therapy, chiropractors, hysterectomy, bowel resections, electrical simulator implant trial, and more just for grins.

Then the next worst thing is reading these blogs and finding that young woman are still being told some of the incorrect/ignorant things from doctors that I was 42 years ago. But, because endo is not life-threatening the research dollars aren’t available to find a cure. It’s so frustrating, depressing, and angering. I’m sorry to be such a downer. But I am so thankful for family and close friends who try to understand and support me!!!

Cindy
Missouri
Submitted 03/20/2014

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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One comment

  1. It’s so amazing how little is known about this disease, and how many women suffer from it. Most of them are mis-diagnosed, like so many other women, going to ER for abdominal pain as a teenager, being told severe cramps are normal, and after so many years would found out that they are suffering from Endometriosis. We have to get the awareness out there. My only advice is to never give up on your illness, always stay strong for your family and love ones.

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