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Christine’s Story (Brain Disorders)

Christine's Story Non Epileptic Seizure DisorderA few years ago, Fight Like A Girl shared my ongoing fight for medical answers, and I wanted to give everyone an update! For the past 6 years, I had been fighting an unknown disorder that didn’t seem to have any cause. It caused me seizures, dystonia, vision and hearing problems, limb weakness and loss of function. I had little help from doctors. Everyone kept telling me that it was all in my head and I should give up.

I would like to report that we have finally got answers! This July, we found two special doctors in New York. We saved up the money and traveled there from my home in South Carolina. They took a bunch of advanced upright MRI images. It turns out, I had a lot wrong with me that, for some reason, no one ever found! I have a brain stem compression, a spinal cord compression, cerebellar tonsillar ectopia, a cerebrospinal fluid blockage, intracranial hypertension from blockage, and my brain is being moved around my skull with every heart beat!

Although we have answers, the hard part is now starting. I have to be on a rigorous visiting schedule with my doctors, and I have a lot of limitations if I want to avoid having neck surgery. We struggle to keep up with the cost. I can’t work or go back to school. But I don’t plan on ever giving up now that I finally have my answers after I was told I never would have them. I’ll always Fight Like A Girl!!!

 

Read the first part of Christine’s story here: https://www.fightlikeagirlclub.com/2013/05/christines-fight-like-a-girl-story-seizures/

Christine
South Carolina
Submitted 08/09/2015

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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One comment

  1. I am very thankful that you have found some answers. Never give up hope and keep fighting.

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