Maia’s Story (Multiple Diagnoses – 10 Year Update)
May 22, 2023
My name is Maia, and this is the first time I have wanted to write my own story of my
My name is Maia, and this is the first time I have wanted to write my own story of my
Before even entering the 9th grade, I had already seen at least 5 different specialists who all seemed to come
My story starts from being a child really, I was always very active, I danced, did gymnastics, fell, walked, went
Hi, I’m Hannah. I’m 13 and I was diagnosed with hyper mobile EDS the summer before I started middle school.
My name is Samantha and I’m currently 20 years old. I first started having joint problems in 2003. It started
My journey was a long, hard road attempting to find out what was TRULY wrong with me. For the first
I was 27 years old when I finally was able to connect the dots with my diagnosis of Ehlers Danlos
I woke up one morning when I was 18 and could NOT walk. I was rushed to the hospital where
Dear World, My name is Maddison Parker, I am 9 years old, and I have Ehlers-Danlos Syndrome. I want the
In January of 2010 I was diagnosed with Ehlers Danlos Syndrome after a discouraging and difficult 10 year journey to