Hi, I know all of our stories are somewhat similar. I just need someone to vent to since everyone around me doesn’t think I am truly sick or doesn’t understand the pain that I experience on the daily. I have had endometriosis since I was 12 and finally got surgery when I was 17, after going to numerous doctors and hospitals, complaining of my pain.
I am now 23 and am hoping to get a hysterectomy soon. I have been in the worst possible pain for the past month with constant bleeding to the point where I feel light headed. I am usually a light bleeder and have short periods. But lately, I have been clotting and bleeding heavily to the point where my blood is filling up toilet bowls.
I just don’t even feel like myself anymore. I have two small kids, including a daughter that is 5, who I got pregnant with after my laparoscopic surgery in 2009, and a son that is 10 months old. I feel guilty when I can’t pick them up or play with them because of my pain. It is so bothersome that I cannot decide what I want or need for my own body. I know that I do not want any more kids, but I sure would like to be able to enjoy motherhood and to be able to work without running to the bathroom or having my heating pad near me 24/7.
It is so hard to keep a job when you always need to leave because your pain is crippling and you feel nauseated. I just want to be healthy. I have started to change my eating habits because I have noticed that certain foods make my endometriosis flare up. I have also started to work out, which sometimes is hard with the back and butt/thigh pain I experience due to my endometriosis. Any tips on fighting through the pain? I do not take any birth control at the moment, but I have previously been on the Mirena, Yaz, & the Lupron shot. I also do not take any pain meds, and NSAIDs do not help with the pain whatsoever. Does anyone else experience severe anxiety or depression? Looking for input. Ten years of battling. I also have PCOS, by the way.
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.