Sunday, April 21, 2019
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One Who Should Not…

A soft beanie slips over the small head of one who should not be hairless A needle plunges into the hip bone of one who should not know that kind of pain A single word scares one who should not yet know true fear Thoughts beyond this world float in …

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Hate Needles?

EMLA is something I only heard about fairly recently, but I so wish I knew about it when I was going through chemo and having to have lots of needles. EMLA is a cream that is a local anesthetic that has been successfully used in UK for 25 years. The cream is available in …

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Member Spotlight: Meet Jillian

I love meeting other childhood and young adult cancer survivors because my fellow cancer survivors really “get” me.  They have been through so many of the same things I have been through.  They truly understand all the challenges that come with being a long-term cancer survivor.  Most of all, their …

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Preparing for Surgery

Dealing with any disease is stressful and challenging. The doctors appointments, medications, and sick days are common fixtures in our lives. Unfortunately with endometriosis, surgery often happens more than once throughout a warrior’s lifetime with the disease. At this point, endometriosis can only be officially diagnosed through a diagnostic laparoscopy. …

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Where Does It Hurt?

Many people who suffer from not only Ankylosing Spondylitis, but also other autoimmune disorders are familiar with these four words. The problem with the question is that there is no simple answer. For me, my symptoms can change daily. For example, yesterday I couldn’t turn my neck, but today my …

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