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Tori’s Story (Endometrial Cancer)

Peach RibbonOn June 10, 2014, one week after undergoing a D&C with hysteroscopy, I sat patiently in my gyno’s office waiting for him to come in and give me my brief post-op check-up. As I waited, I reflected on what had brought me to this moment.

Currently 31 years old, I have struggled with irregular periods, odd cramping, hair growth, and weight gain since I was 19 years old. I knew then that something wasn’t right and I was very vocal with my doctors. I had always been met with the same response that my cycles would work themselves out, I shouldn’t worry because I wasn’t trying to have a baby and I needed to lose the weight. I was given countless prescriptions for birth control pills, and prescriptions for Provera to force a period when my body wouldn’t respond naturally. I tried to explain that while I could be more active, my weight gain seemed to happen in large spurts and I couldn’t get a handle on it. Still, I was given text book responses. That is until I turned 26. I began seeing a new doctor who seemed to have some understanding of my condition. He ran a battery of blood tests, checking hormone, cholesterol, blood sugar, and vitamin D levels. He reviewed my history and diagnosed my with PCOS (Polycystic Ovarian Syndrome). He too prescribed more birth control pills, and suggested weight loss (although he acknowledged it would be difficult because of my hormones). After a year and a half under his care, I began having fairly regular periods but they were extremely heavy. This continued off and on until March of 2013, when my body went completely crazy and I would bleed heavy for 16-17 days at a time. Each time I became more anemic and needed more hormones to stop the bleeding.  I was weak, scared, and frustrated.

In July of last year, after another ER visit, I sought the  care of a new doctor at a women’s care center.  He listened to me,  but noted that treatment options were limited.  A woman my age didn’t fit the bill for much more than hormone treatment.  We tried everything!  Following my last ER visit in Spring 2014, where I passed out from blood loss, I was taking three birth control pills a day to keep from bleeding.  It didn’t work.

By late April,  my doctor agreed a D&C with hysteroscopy was needed.  Previous ultrasounds had already revealed a thickened uterine lining, so he wanted to test the tissue. On June 3rd, I checked in for the procedure.   The procedure went well.  My recovery was easy.  I stopped bleeding the same night!  I was so happy.  My post op followup  was scheduled for one week later.

And there I was sitting in the exam room waiting.  My doctor came in, asked me how I had been feeling, and then he got really close.  I knew. I knew he didn’t have good news.  He said that my uterine tissue confirmed cancer cells.  My head was spinning,  the words bouncing around.  I felt an instant pain.  I don’t have children yet and I’ve always wanted children.  The weight of the moment made my head hurt. He’d already sent my information to a gynecological oncologist.

My appointment was less than a week later. She was great; warm and informative.  More tests were scheduled,  and a followup for July 21st. Until then, I wait.

That’s what I’m doing now…waiting.  July 21st can’t get here soon enough.  We’ll talk more about a hysterectomy and next steps.  Waiting is not easy,  but I refuse to be consumed by the heaviness of cancer.   For now,  everyday has been normal. I’ve shed a few tears, but not too many.

I am glad to have found this site and shared my story.

Tori
Nevada
Submitted 07/09/2014

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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5 comments

  1. Tori
    You keep fighting & keep your head up. Ask all the questions you have with the oncologist. I am going through the same thing as you & I’m Grade 1 uterine cancer. Hysterectomy is recommended (textbook) but there are women who want to preserve their fertility. I’ve chosen this route because my MRI showed it’s not invasive yet. I will need to do IVF to assist a pregnancy & the docs agreed to try one cycle if my cancer is in remission. Right now getting treated with medications including Megace & Metformin. I’m happy you have good doctors! Feel free to ask me any questions. I was just diagnosed in April of this year.

    Lisa Cuyno

  2. Verkesha jaramillo

    Keep fighting Tori:) I’ll say a prayer for you.

  3. Your story sounds exactly like mine. Best of luck to you always.

  4. I appreciate all the support on here and Facebook.

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