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Terri’s Story (Lupus, Sjogren’s, MCTD)

Purple RibbonI was diagnosed with having lupus almost 3 years ago. I am now almost 60 and was told by one rheumatologist that this type of illness often goes into remission the older you get, but I’m still waiting! I also have Sjogren’s and possibly an overlap issue with MCTD, though that is my biggest dread, in a way. I have so far resisted conventional drugs because they seem to make you more ill, though I haven’t ruled them out if the need arises, and I don’t judge others on their individual choices.

Meanwhile I try to address the issues with healthy diet and lifestyle. I know it’s rather like trying to climb a mountain with a toothpick, but there has been some success! I take vitamin B-complex, kelp, and vitamin D (woefully short in Lupus) amongst other things.

Exercise is difficult, but I keep trying! I too have dumped the forums where everyone seems so negative. I like to think that there is a better way forward, and every day brings new challenges, but new hope.

Terri
United Kingdom
Submitted 02/10/2016

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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One comment

  1. I think sometimes Drs are afraid to recommend alternatives. I have had to switch docks because of this. You keep going and stay strong!

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