Survivor Stories & Information

MISSING MY LIFE: Remembering my first year with fibromyalgia and the lessons it tried to teach me. Yes I did type “tried” to teach me, as I am obviously a slow learner when it comes to my will power versus my body’s capabilities and limits. I like most people had …

Hi, my name is Veda. I was diagnosed with fibro last year, but I have been suffering since 2006. I have a child and he is 11 years old. I just got married last November of 2013. I have really been in pain. My whole left side of my body …

Well, this is a long ugly road that never got clear till recent years and we still fight every day! When I was in my teens I was an active farm girl. I would get these PAINFUL cycles. I would be in bed for two to three days, it scared …

After thinking I was going crazy for years in 2010, my new family doctor sent me to see a pain management doctor for a second opinion. They finally told me I had fibromyalgia. The doctor at the time told me to go home and Goggle it because he didn’t have …

My name is Stephanie, it took me almost three years to figure out that I had RA. I had such a struggle with doctors. I had several rounds of blood work. One rheumatolgist told me that I didn’t have RA. I got lucky and found a doctor who was patient …

My name is Johanna, I am a 36 year old who has been living with various health issues my entire life. I was born with an immune deficiency called hypogammaglobulinemia. With this disorder my immune system does not work properly and I can get really sick very easily and if …

I am a 38 year old, married, mother of three. I have been sick for a very long time and anyone who has been, knows it’s a hard and frustrating life! For the last 10 years I’ve known SOMETHING was wrong with me, but how do you make doctors and …

Six years ago, 21-year-old me, was diagnosed with fibromyalgia. That explained why my body was falling apart with pain. That also explained my warlord’s mood swings, exhaustion, TMJ, anxiety, and depression! Then along came painkillers and anti-depressants that nuked my stomach. I started a vomit fest that sent me to …

I was told about four years ago that I had fibromyalgia. Not long after a motorcycle accident my body began to hurt. I thought it was from the accident so it took me several months to report to my PCP how I was feeling. I started having memory loss, forgetting …

Six years ago I became very sick. After a lot of tests the doctor told me I have: lupus, fibromyalgia, and degenerative disc disease. So much happens to your body, people can look at you, and never know how sick you really are. He also said to me he didn’t …