I was living a pretty normal life until November 2007. I had a sick friend who had couldn’t go out in the cold, and me being me, I wanted to help her. She needed her medicine from the pharmacy, so I went to pick it up for her. I never made …
Read More »Amelia’s Story (CRPS, Amputation)
Read Amelia’s original Power Story submission here. Two years ago, I submitted a story about finding out I had been suffering from CRPS since my tendon transfer surgery in 2003. The tale was slightly less general then I expected to be, and the outcome was very nice. However, I am now …
Read More »Nancy’s Story (RSD)
Hi, My name is Nancy, and I live with–I don’t say suffer–RSD. I had bilateral carpal tunnel surgery, which triggered RSD, back in 2001. The one thing never mentioned to me. I found out real quick just what RSD was. It’s a terrible, life-changing disease. I’ve had nerve blocks through …
Read More »Amelia’s Fight Like a Girl Story (CRPS/RSD)
As a preemie, I am no stranger to hospitals and diagnoses. However, even with all the surgeries, shots and medications I have had, nothing could prepare me for something I didn’t even know I had. Growing up with mild cerebral palsy, I knew about not being able to walk right. It …
Read More »Jennifer’s Story (RSD)
I first developed RSD (reflex sympathetic dystrophy) as a preteen at age 13. Back then, no one knew how to treat it, only to diagnose. It was put in my medical file and never spoken of. I have been living with this monster for almost 30 years. I was finally put on …
Read More »Andrea’s Story (CRPS/RSD)
On Nov 27, 2007, my day started as any other. I went to my friend who was sick and needed medicine. She could not go out because she had a trac. I decided to go for her. We lived in New York. As I was walking across the street, I …
Read More »Allison’s Story (CRPS, POTS, Gastroparesis)
Unbroken Spirit in a Broken Body Barely conscious, lying motionless, sounds of hurried conversation and hospital machines loudly blare as my heart rate skyrockets beyond 160, my blood pressure falls past 70/30, and my fever spikes to 105. In the ICU, fluids are vigorously pumped into my thin veins as …
Read More »Tiffany’s Story (CRPS)
I have had excruciating pain for the past six years. I never knew what it was, it started in my right hand and went into my shoulder. I finally went to see a neurologist in 2011 and they didn’t see what what was wrong so I kept dealing with the …
Read More »Ashlee’s Story (CRPS)
My name is Ashlee. I grew up in a small town called Waterloo, Nebraska. My whole 23 years of life I have loved being active with sports and animals. My family and friends also mean the world to me. I have been bowling now for almost 19 years, I danced …
Read More »Deeann Elizabeth’s Story (CRPS)
Deeann Elizabeth Pavlick. Battling reflex sympathetic dystrophy. Former proprietor of five interior decorating florist shops. I was born in New Jersey, with an artistic quality in designing, which I used in my businesses. While attending floral and interior classes in Florida I also did freelance modeling. I attended John Robert …
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