Everyday is a struggle with my body it seems. Pain and pressure have become my life. Two years ago, after what seemed like forever I finally got an answer as to why my head continued to hurt no matter what I did to try to stop it. After multiple weekly …
Read More »Vicki’s Story (Ankylosing Spondylitis)
I have been through a lot throughout my life. When I was eight I was molested and raped by a family friend. At 16 I was ganged raped. I was raped again when I was 17 by my so called boyfriend. I went through a lot of counseling throughout my …
Read More »Ashley’s Daughter’s Story (Chiari Malformation)
This is actually about my 8 year old daughter. Two and half years ago we found out that she had chiari malformation, along with other health problems. On June 28, 2010, she had decompression surgery. Since then, we have had quite the struggle dealing with everything that has come from …
Read More »Lori’s Story (Chiari Malformation)
I am a wife, mother, girl-scout leader, college student and I work part time. Shortly after my 29th birthday, I began having severe headaches. I have always had a high tolerance for pain. After gallbladder surgery and both of my C-sections, I rarely had to take the pain medicine. The …
Read More »Brittany’s Story (Chiari Malformation)
My name is Brittany and I’m 24 years old. Since 2007, I have had four brain surgeries; my most recent two being this year in February. I spent most of my life with health problems that the doctors and specialists could not ever figure out. They ran test after test …
Read More »Kaylie’s Story (Chiari Malformation)
Hi, my name is Amber Barnes. My husband, Benjamin Barnes (Moore Police Officer), and I have a 5 year old daughter named Kaylie. My daughter was diagnosed with Chiari 1 Malformation. Short story of it all: her brain has run out of room, so it is now protruding down into …
Read More »Kathy’s Story (Chiari Malformation)
I was a healthy person who, like many, took life for granted. Not anymore. Two years ago, I was confronted with a life-and-death decision. I agreed to undergo brain surgery in the hope it would stop the excruciating headaches I was suffering with every day. I’m sharing my story in …
Read More »Marcella’s Story (Chiari Malformation)
In 1996, I was in a car crash, I walked away with whiplash, or so I thought. After a year, my symptoms were still there. I went to see my general practitioner. He said these can go on for a long time. When the symptoms got worse, I asked to see someone …
Read More »Toni’s Story (Chiari Malformation)
For me, the headaches started in my pre-teen years. They were attributed to stress, hormones, sinuses, and any other everyday cause you can imagine. I frequently felt tired for no reason and pain seemed to affect me in different ways than others my age. Over the years, I was put …
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