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Stacy’s Story (Lupus)

Purple RibbonHi, my name is Stacy Tann. This journey started for me in the year of 2012. I started out having bad headaches, sore muscles, mouth ulcers, extreme fatigue and major joint pain. After going to my primary care physician twice and having no clear vision of what was going on, I felt like I was just at a dead end. I have been hospitalized twice throughout this journey so far. Numerous times I kept telling my doctor that something was wrong, and I was always told that it was just a small case of sinus problems.

In December of 2012, I was faced with a minor cold that I could not get rid of. After about two weeks of medicine, it finally went away. Eventually, after a change of primary care physicians, I was finally on the right path. After many different tests, I only had a positive ANA test. They ordered more tests to check for autoimmune disorders. I was later diagnosed with LUPUS (SLE) in 2013. By this time, I had fluid around my heart and my lungs. Every breath was painful to me. This was after much day to day pain and almost a total loss of hair. After starting Lupus meds, I started to notice major swelling in my feet. After many doctor visits, I was diagnosed with Lupus Nephritis (class 3 and class 5). The thought of dialysis and having a kidney transplant was very sad to me. Through all the bad news, after a doctor visit, I was still thankful for life.

I just recently completed a year of chemotherapy, and it has helped me tremendously. Many days, I have laid in bed in so much pain that I could barely get up, and if I did, it took a while. There are other days where I have wanted to just give up on this fight and let Lupus win. I thought to myself, if my children can fight for me, then I must also fight for myself. Life is nothing if you don’t want it for yourself. So one day, I repeated to myself, “I will not be defeated, and it will not control my life.” Instead, I took the stand to control it. Pray always. Live Life. Be Happy.

Survivor Status

Stacy
North Carolina
Submitted 10/11/2015

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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3 comments

  1. God bless you girl

  2. Well done you for not giving up! There is no easy way but mindfulness in each day, each moment helps to slow-down the express train of fear. I will pray for you Stacy. God bless.

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