Monday, July 22, 2019
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Sarah’s Fight Like a Girl Story (Endometriosis)

Sarah's Story (Endometriosis)I started my period when I was 9 years old. It was the scariest thing that had ever happened to me. Shortly after that, the pain and the bleeding was uncontrollable. My mom was concerned (she and her mother have endometriosis). She took me to the doctor and they just put me on birth control.

After 10 years of suffering, my mom and I convinced my doctor that something needs to be done, so I had surgery. My mom was right, I had endometriosis. After surgery, they started me on Lupron Depot. That was an experience of its own! At this point I was 19. Everything then seemed to get back on track until a year later.

Now, I am back to square one. They think that it has spread to my bladder, due to unable to feel it. This is so embarrassing. I am 21, and I’m wetting my pants! I am now back on the Lupron shot, hopefully this will hold me over for a while. The only thing I care about is one day being able to have children. I know they tell women all the time with the same thing I have that they will never be able to conceive. All I have to do, and I encourage others to do the same, is stay positive!

Sarah
Missouri
Submitted 12-13-11

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This article is intended to convey general educational information and should not be relied upon as a substitute for professional healthcare advice.

15 comments

  1. Sarah do know you are NOT alone.I totally understand.Unfortunately my endometriosis spreadto my bladder. Hmmm with that being said I have been diagnosed with IC. I have become a candidate for a bladder stimulator. Sucks right? I wet my pants as well, I wore a catheter for bout a month I hate it. Having endometriosis discourages me in so many ways many times leave me feeling I’m less of a woman. It has caused many heartaches, pain,&longsuffering. Guess what in all that I’ve been through and still battling I still find a way to encourage other woman that I am an advocate for endo sisters. I’m starting a foundation. My goal is to raise awareness and money and find a cure even if I have to die trying. I want to encourage you to keep pushing past your current illness it will get better. On your good days enjoy everything Sarah wants to enjoy. On your bad days as crazy as this may sound I say be thankful you are able to even feel endure the day BC many people ate worse off then you are who has no feelings or have a desire to fight pass their pain. Hold on we are going to make it. I’ve been fighting 15 years and BC of the endometriosis I have dealt with cancer 3x. But I’m not losing hope and don’t you!. Please feel free to email me at Quanda410@yahoo.com and I’m on Facebook under my name LaQuanda Hart. Remember KEEP PUSHING!!

    • LaQuanda,
      Thanks for your uplifting spirits! It’s people like you who help others see the bright side of life! I hope that all goes well for you! Please keep me updated about the foundation, I think it is a great idea and I would love to see it happen!
      Sarah

    • Wow! Your words are profounding! Thank you for sharing your story. Please post more info on the foundation…..I would GLADLY participate!

  2. Stay positive and don’t give up!! My mother had endometriosis and tried for many years to get pregnant after my brother was born. She had a partial hysterecomy three years before I was conceived and had only one fourth of an ovary when she got pregnant with me!! I am living proof that you should stay positive.

  3. I am so sorry for what you are experiencing! I have been through YEARS of tests, surgeries, meds. in living with endo……I did the Lupron twice and I felt it did more harm then good (for me). After being put through all of that I had to hear doctors tell me that it’s all in my head…one even said after we do the hysterscopy/endoscopy, I’ll let you know if your nuts…..WHAT??? I’m 37 and was “diagnosed” in 2004, just 3 months after giving birth to my daughter (yeah, Lupron injections with an infant….that should be ILLEGAL); I still ask myself why this is so difficult to treat/cure? I wish you all of the best!

  4. I can honestly say I completely understand the pain you have to endure when it comes to endometriosis. I myself suffered with it for many years. I do how ever have a complete hysterectomy done because it was to much for me. I did have 2 children before I was finally diagnosed with it but the pain it causes can sometimes be so unbearable. I sometimes wonder if it did get in to my bladder and they never knew. I have pain sometimes still even 9 years after the hysterectomy. Stay strong. I know some days it seems like there is no help for it but I believe I had endo before I even conceived my children. You are in my thoughts and prayers and wish you the best of luck!!!

  5. I had a complete historectomy may 29,2012. I always thought i had endometriosis my whole life. I was never diagnosed with it. Now several months after my surgery my abdomine is still very painful. I’m having incontinent , at night i wake up with a painfully full bladder, and for some so::me reason i have atingling burning streaks down the inside of my thighs all the way toy feet. Anyone else have these symptoms?

    • @Joyce Youngloodl Those are common symptoms after not having endometriosis completely removed from your body, having just a hysto removes the endo from that area but if its in other areas (cul-de-sac, bladder, bowels) 9 times out of 10 it was left untouched and continues to thrive on its own causing you pain.

  6. Sarah You hold on to your dreams and what you want I have a friend whom has endometriosis and she was told this 19 years ago she now has a 17 15 13 years old daughters . And right now she will be having a hysterectomy in a few weeks. So never give up hope I myself had problems conceiving children and years ago they did not know what i had but i had what my daughter has PCOS. and it has turned into complex Endometrial hyperplasia and yes I need a hysterectomy but because of 2 things Dr. will not do one I am over weight very much and I have no health insurance. Yes I have Atipica cells so yes it is cancer but I now take a drug Megace that has kept it at bay. But you keep up the good thoughts and know miracles happen all of the time they told me I would never have children but I had 2 beautiful daughters Nicole and Sarah unfortunately my Sarah passed away at 5 from Leukemia doctors never caught but I would not had given up one second.

  7. Thank you for sharing your beautiful story. I too experienced the journey of endometriosis and, at the age of 39 had to have a complete hysterectomy. My husband and I were so sad that our dream of children was over. Because of our ages the adoption agencies said we were too old; then I started hearing about international adoption. I am happy to report that 16 years have gone by and our beautiful daughters are teenagers now! I realized that maybe I was supposed to be the mom of children given up at birth and placed in foreign orphanages (something I wouldn’t have done if I could have had my own children). All I know is our daughters are beautiful, happy, healthy and I am truly blessed to be their mom. Stay strong Ms Sarah. You are not alone!

  8. I can relate 100%. I got my period at age 8 & was not diagnosed with endo & adeno until I was 20. Then I was told I would never have children. I am now 30 & am currently on Depot Lupron as well….. 3 years ago I was also diagnosed with fibromyalgia & 5 different vitamin deficiencies….6 months ago diagnosed with lupus. Endo has too been dibilitating as it is. Hope you have some relief from Lupron. 🙂

  9. You are definitely not alone. I started my period when I was 10 and the bleeding was always really heavy and my cramps were so bad that I would have to leave school. My mom had endometriosis before she had me and was really concerned that I had it as well. I was started on birth control when I was 13 and when I was 15, I had to have surgery because of a cyst and it was then discovered that I did in fact have endometriosis. I tried many different birth controls throughout the years but none of them ever seemed to help. When I was 26, I finally had the Lupron Depot shots administered and they helped for a short time but they didn’t last. I now have an IUD because the estrogen was causing me to have stroke like migraines. I am now 31 and it has been my fear for years that I won’t have kids of my own. I will always stay positive and know that there is always hope!!

    • I started seeing my period at age 13 i don’t remember when i started feeling pain in my tummy,but it was in my 20’s. I did so many ultrasound, pap-smear and being to so many doctors to find out what was d cause of the pain but couldn’t get a specific diagnosis. I had my first child in 2006 at age 22 through all that pain i was feeling. As for my period i use to feel a lot of pain but after having my first child i had no more cramps,i had to just look out for my period each time it’s due. It was then in 2010 i was sent to do a laparoscopic surgery,there i was diagnose with endometriosis. I was suppose to take an injection for 3 months to help,but in that same year i found out i was pregnant with my second child. Until now i haven’t taken any medication except i’m now on family planning,the pain is not so much like it was at first except when i do long standing i will have back pain and when i exercise i will feel d intensity in my back and battox. I read up on it at times and what can happen it it’s not treated which give me a little scare,so i’m planning to go to my doctor when i get some money because i do want to have another child when i get married.

  10. I started seeing my period at age 13 i don’t remember exactly when i started feeling pain in my tummy,but it was in my 20′s. I did so many ultrasound, pap-smear and being to so many doctors to find out what was d cause of the pain but could’t get a specific diagnosis. I had my first child in 2006 at age 22 through all that pain i was feeling. As for my period i use to feel a lot of pain but after having my first child i had no more cramps,i had to just look out for my period each time it’s due. It was then in 2010 i was sent to do a laparoscopic surgery,there i was diagnose with endometriosis. I was suppose to take an injection for 3 months to help,but in that same year i found out i was pregnant with my second child. Until now i haven’t taken any medication except i’m now on family planning,the pain is not so much like it was at first except when i do long standing i will have back pain and when i exercise i will feel d intensity in my back and battox. I read up on it at times and what can happen if it’s not treated which give me a little scare,so i’m planning to go to my doctor when i get some money because i do want to have another child when i get married. But for who don’t have any kids just hang on and keep praying.

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