Hi, my name is Naomi, and I have had one lap surgery. I did not get diagnosed with endometriosis until March of 2014. The interesting thing is, I was a major athlete and always had light periods (but had weird ovulation pain and major cramping). Then I went on the pill and had even lighter periods and zero period pain! I never planned to have kids, so I got off the pill to take a “break.” This is when things got really bad. Periods were heavier, and I became extremely exhausted to the point I had to miss work for a day or two, just so I could sleep. I had to take 800 mgram ibuprofen throughout the whole time I was on my period and place a hot pad on my pelvic area. Then as the months progressed, I started getting shooting pains down my left leg and pain everywhere inside my pelvic area. I felt like I was going crazy or something. I never felt like myself anymore. I eventually quit working out ’cause I was tired all of the time.
Finally, my doctor at Kaiser performed surgery, and she came back and told me that she could not get it all out. I believe she also said that it was still on my rectum area. After 4 years since the surgery, I can still feel it on my rectum and on my bladder. I feel this sharp pain and annoying pressure all month long. I know she did the best that she could to get it out. However, after doing extensive research and reading about this issue, this is what I have found out:
The endometrium must be excised (cut) out. Not burned. Burning it is a temporary band aid and causes scarring, and some of the endometriosis can be left behind. Leaving some behind is BAD, and you must find a specialist who has the art, knowledge, training, and years of experience on how to get it ALL OUT from all organs. It has to be removed completely from the body by an endometriosis specialist.
Right now, there are only a small handful of surgeons in the United States that are EXCELLENT and know what they are doing. In fact, I hear women from all over the world come to these two doctors in California: Dr. Camran Nezhat and Dr. Andrew Cook (Palo Alto and Stanford area). I have an appointment with Dr. Nezhat, and I will have to tell you how it goes. But I have a higher confidence rate that he will be able to get it all out. Because this is all they do all day! They are Endometriosis ONLY specialists.
The other thing is (of course, this will be expensive) Dr. Nezhat takes Blue Shield (not sure about Dr. Andrew Cook). But my feeling is, it will give you your life back. My plan is to see if I can get all of the endometriosis out, then get an ablation, then reinsert the Merina. The Merina is the only thing that is keeping this endometriosis at bay for me. Now, I know that that may not work for others, but for me, it beats the alternative: getting a hysterectomy. I have been also reading from Dr. Andrew Cook that endometriosis is far beyond an OBGYN issue. That it is possible that it can travel through the Lymphatic system of the body and mimic autoimmune diseases. He explains diet is another key element to free yourself from pain.
Some of these foods contain estrogen which is the enemy, and the rest of the foods and drinks make you inflamed! Anyway, this is just what I have learned. I am not saying these are all the answers, but thought I could put this out there and help others who are in pain like me. Love ya, Girls. YOU ARE NOT ALONE!!!!!
San Francisco, California
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.