Tuesday, January 21, 2020
Home / Power Stories / Monique’s Daughter’s Story (Craniosynostosis)

Monique’s Daughter’s Story (Craniosynostosis)

Monique's Story (Bi-Coronal Craniosynostosis)My story begins with my baby girl Ashley. She was born on September 7, 2010. I had noticed something was wrong with the shape of her head. So at her 1 month check-up the doctor referred us to a genetics doctor. Her doctor had also noticed something was not right with the shape of her head. So we followed up with genetics doctor who then referred us to a Craniosynostisis doctor.

We were very confused and did not know what was going on with our baby girl. When we finally got to see this doctor they had told us that the sutures in her skull were closed shut and surgery would have to be done on her skull. They had told us that she had Bi-Coronal Craniosynostosis. I was devastated and so sad. I did not want my baby to have to go through a major surgery at 6 months old.

So I did research and started talking on websites with other mothers and it really helped me to see that other children had it, and not just my Ashley. I learned that there are so many different types of Craniosynostosi’s not just one.

We went through with surgery which happened on March 25,2011. I am so happy that I did it and she is fine. Surgery went great, as well as the recovery. She is 1 year and 3 months post-op and doing great.

Monique
California
Submitted 6-19-2012

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

One comment

  1. My Aunt has been fighting cancer for 13 years they gave her 2 years to live 13 years ago a single mom always working she is the strongest women I know the Dr’s said it’s been her and God for years she had to stop work 3 months ago and is know to a point were she is ready to go see the good Lord and is still fighting so lady’s hold your heads up and fight because you can do it love to all and may God Bless you.

Leave a Reply

Your email address will not be published. Required fields are marked *