My story begins with my baby girl Ashley. She was born on September 7, 2010. I had noticed something was wrong with the shape of her head. So at her 1 month check-up the doctor referred us to a genetics doctor. Her doctor had also noticed something was not right with the shape of her head. So we followed up with genetics doctor who then referred us to a Craniosynostisis doctor.
We were very confused and did not know what was going on with our baby girl. When we finally got to see this doctor they had told us that the sutures in her skull were closed shut and surgery would have to be done on her skull. They had told us that she had Bi-Coronal Craniosynostosis. I was devastated and so sad. I did not want my baby to have to go through a major surgery at 6 months old.
So I did research and started talking on websites with other mothers and it really helped me to see that other children had it, and not just my Ashley. I learned that there are so many different types of Craniosynostosi’s not just one.
We went through with surgery which happened on March 25,2011. I am so happy that I did it and she is fine. Surgery went great, as well as the recovery. She is 1 year and 3 months post-op and doing great.
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.