I’ve never had the opportunity to share my situation with others that are going through a similar battle. I feel very privileged to do so. I’m 32 and have fought chronic pain for several years now. My pain is worst in my spine, hips, and legs. I also have numbness/tingling in my arms and legs among many other strange symptoms. My symptoms became much more severe after having my only child, a boy, in 2010. My sweet little Lochlan is the reason I continue to fight like a girl…and a Mommy!
In 2011, I had to stop working. I can no longer do many of the things I used to do. My husband does so much and is so supportive. Tomorrow is our 6th wedding anniversary. I’m so grateful he is sticking with me through all of this.
I have been to many doctors, and have found little pain relief with still no real diagnosis. I have been told I have Ehlers- Danlos, but the doctors say it’s not causing my pain. These doctors just don’t understand what this unknown illness is doing to my life. They don’t know what it’s like to not be able to let your 2 old’s little hands touch you because it will bring you to tears and scare him. I wish I knew how to explain to these doctors that just because it’s a complicated case they shouldn’t just leave me to suffer. I know my doctors are giving up on me, but I will not. I will keep searching for help.
Thanks to everyone that has posted their stories here I have hope. I hope to be able to continue my story in more detail when I feel a bit better.
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.