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Michelle’s Fight Like a Girl Story (Interstitial Cystitis)

Michelle Interstitial cystitis story  When I was in junior high I started having these pains that I just couldn’t describe. My mother kept bringing me to the doctor but they just kept saying it was a bladder infection. The pain stayed and wouldn’t get better. It continued through out high school and college. Doctors could not figure out what it was. One doctor would refer me to another and then to another. I was so overwhelmed with doctors guessing and never giving me any answers.

It had gotten to the point that the doctors had already removed my appendix, done a complete hysterectomy, and removed my gallbladder. I was then referred to another doctor. She suggested I go see this surgeon so he could possibly see if I had a lot of scar tissue. The surgeon decided to go in and see the next day. I was told the first thing I said waking up from surgery was, “did they see what’s wrong. ” I was then told that when he went in he looked around and didn’t see any scar tissue but as he was removing the camera it slipped out his hand and it turned towards my bladder. He said, “it just didn’t look right.”

The doctor referred me to yet another doctor. I went to see that doctor and he said he needed to do a cystoscope. A week later results were in and it showed that it was interstitial cystitis. I was happy that they finally figured it out but upset because he said he didn’t know where it comes from, there is no cure, and there are treatments that may or may not work. The next five years I would go threw 10 to 15 different types of treatment. I was then referred to ANOTHER doctor. That doctor tried another type of treatment, medications, and requested that I also see another doctor that he partners with. They later informed me that the medications I’m on can be harsh on my liver. Since I would need to stay on these medications until either a cure or the rest of my life, I needed to consider getting a pump put in so the medicine could bypass the liver or I could be looking at a liver transplant. I agreed to pump. After six months I was diagnosed with congestive heart failure due to one of medicine in the pump. The medications were changed. For the past year things have been better except for a few flare ups. IC is a part of my life but it is NOT my life. I will never give up. I don’t like dealing with IC or getting my pump filled. My children, my best friend Tammy, and other close friends are the reason I keep pushing to not let IC take over my life. There will be a day that I will be able to say, “I don’t have IC, I HAD IC.

LOVE YOU GABBY, MYA, TAMMY. This too shall pass.

Michelle
California
Submitted 08/18/2013

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This article is intended to convey general educational information and should not be relied upon as a substitute for professional healthcare advice.

3 comments

  1. We fight like girls together! I love you sis ♡

  2. Dear Tammy,

    I feel horrible about everything you went through because of IC, and all the surgeries, etc. I discovered I had IC (well, the part where your bladder, etc. hurts so bad and you don’t know what to think it is) when I was on a vacation in Savannah, GA. I live in PA. It was 1992 and I was 43 years old. I had previously had several cystoscopies after infections and was able to tolerate them. But after this much pain, I went to a urologist who told me they wanted to do a battery of tests. I trusted all would be well…..they did not use any anesthesia, and did a cystoscope and some under water tests (I think they were called urodynamics)……anyway, at the end, I heard the doctor say, with an awful look on his face, “I think it’s interstitial cystitis. As luck would have it, several weeks before that, while cleaning my house I was listening on the radio and a program on IC came on. I remember thinking, “Well, that’s something I hope I never get!” The tests I went through were so barbaric that I never looked back. I bought Catherine Simone’s books and many others and studied and researched. I was also on an awesome website (this one is no longer there), an signed up to receive the ICA’s newsletters, where many suggestions were put by others. After all this, I created my own little natural supplements “cocktail” that I took faithfully twice a day for several years. My IC got better and better. I hardly know I have it now. And I suffered horribly in those first few years. The best thing I took was olive leaf extract with a high percentage of oleuropein (the active ingredient in it)….a lot of soothing oils (flax seed oil, evening primrose oil, cod liver oil, etc. I wish I could remember because I know there might be like two other things, but these were the basics) I took them in the a.m. and right before bed. Within a week I started to feel better. I kept at it and did this for two years, and went back to it if I had a “flare”. I am 64 now. My belief for myself is that IC stems from allergens, hormones, and autoimmune problems. If hope even a little bit of this will help you. If I had to point to one thing, it would be the olive leaf extract….get 18% oleuropein if you can, if not, 12%. I think my brand was Nature’s Way. OLE is a natural antibiotic, antifungal, anti other things, too. REad up on it. And buy every IC book you can find. I have a ton of them. I wish you the very best.

  3. Awesome story Michelle! My IC was not diagnosed till this year by a urogynecologist after years of just taking antibiotics and being told I have a bladder infection with NO bacteria present. IC has drastically changed my life I am controlled now with 3 medications but still get flares ALOT. It is a very depressing disease, but I have Hope and Faith that a cure will be found in our lifetimes, till then stay strong IC sista and fight like a girl!

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