My story starts in 2011. I was working and noticed pain constantly in my left groin and hip. I would lose feeling at times and almost fall. I kept going to the doctors. I was told I pulled something or I had bursitis in my hip. As time went on I had X-rays, ultrasounds, and a MRI, but no one could tell me anything.
Finally when I went to bed one night, I stretched out and had pain in my upper thigh. It felt like something filled up inside my leg. I went to the doctor, they did a MRI. I was told it was a hematoma nine cm wide. I said, “How did that happen?” I was told I must have hit my leg. I knew that I didn’t the size of the hematoma it was as if a football player slammed into me.
We went to a specialist and still no one could tell me how this happen. It took six months to heal. At almost six months I went to get out of my truck and felt like something spilled out again. On June 25th I got an ultrasound which led to another MRI. It also led me to find out that day that I had a tumor in my leg 9.6 cm wide. Wow! My first words to doctor was, “What do we do now?” That began journey to Iowa city hospital. They did all the tests and of course a biopsy. What they found was a poorly differentiated synovial sarcoma stage 4 cancer. What do you say? You cry and then get on with it.
I was scared but I am a fighter. I had five and a half weeks of radiation and two sets of four days of intense chemo solution. I loved the nurses coming in in their full body suits covering them (robes gloves goggles), giving me something to kill everything in you and all your hair. I made it through and I got the certificate to prove it!
The tumor went from 14 cm to 11 cm. Surgery was scheduled for September 25, 2012. It was a nine and a half hours surgery on most of my thigh muscles, some tendons, nerves, oh and the tumor. I also had to put a rod on my femur bone. I dad lots of physical therapy to learn how to walk again.
I went to all my checkups which leads us to now April 2014. Now at my last check up, I found out I have it back in my lung where it shows up in a lot of synovial sarcoma survivors of a limb. So I have to go back May 15th to see if it has grown more. It’s a nodule about 7 mm it grew that big in three months so we will see. Thanks for listening and I pray for all of you!
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This article is intended to convey general educational information and should not be relied upon as a substitute for professional healthcare advice.