Friday, October 18, 2019
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May 12 is Fibromyalgia Awareness Day!

Fibromyalgia, in a large part, now controls my life.

In fact, it gives chronic pain to more than 10 million Americans, and 3-6% of the global population (most of whom are women, but can also effect men and children).  Fibromyalgia is also common in families, and my family is no different.  My father and several aunts and uncles either have diagnoses or suffer with the same complaints.

These people are often stigmatized by those in the population (including healthcare) who are uneducated and believe the illness is just: faking it, being lazy, etc…

Fibromyalgia sufferers are often left without adequate pain management and with emotional abuse from their doctors.

A portion of us are truly disabled and yet do not receive any kind of disability support from the government.

Research is being done, but there is still very little known about the underlying causes, despite the finds of many overlapping symptoms.

According to the National Fibromyalgia Association, “most researchers agree that FM is a disorder of central processing with neuroendocrine/neurotransmitter dysregulation” (causing extreme pain amplification!).

People need to hear about Fibromyalgia.  The population needs to learn about Fibromyalgia and its devastating effects.

On May 12, wear purple.  Spread the word.  Support this cause!!

xoxo,

Annie

This article is intended to convey general educational information and should not be relied upon as a substitute for professional healthcare advice.

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4 comments

  1. I SUFFER FROM FIBROMYALGIA, I”M IN ALOT OF PAIN, WHEN I GET COLD, ITS SO BAD I GET IN BED AND I JUST CRY FROM THE PAIN. THE DR. IN SCOTTSDALE AZ. TOLD ME THAT I HAD IT. WHEM I’M STRESS OUT IT MAKES IT WORSE. LOT OF PEOPLE TRIES TO MAKE YOU THINK IT IN YOUR HEAD, BUT ITS NOT. I STARTED HAVING THIS PAIN AFTER I WAS IN TWO BAD CAR ACCID’S. EVERY JOINT AND MUSCLE HURTS IN MY BODY. SOMEDAY’S I’M SO TIRED I CAN’T HARDLY DO ANYTHING AT ALL. I JUST TELL MY FAMILY AND FRIENDS THEY JUST HAVE TO UNDERSTAND IT OR NOT, SOMEDAY I CAN GO AND OTHER DAYS I CAN. I USE TO FEEL ASHAMED BECAUSE I COULD’NT DO THE THING’S I USED BUT NOT ANYMORE BECAUSE I CAN’T HELP. I LOOK THIS WAY MY FAMILY AND FRIEND JUST HAS TOTAKE ME THE WAY I’M, BECAUSE I DID’NT ASKED FOR THIS!!!
    WILLIE

    • Venita Garcia-Schultz

      Willie-

      I know it’s tough at times, and that there are days you just want to throw the covers over your head and whither away, but hang in there! No need to EVER feel ashamed. I am a firm believer in the saying that “everything happens for a reason” and for some reason, God has chosen some of us to have Fibro. Try to find the positive in it, and instead of focusing on your limitations, focus on what you can do, and try to do it well! For instance, on my good days, I cook up a storm, and play with my daughters, and love to visit with friends. I also go to the race track and help my husband out…both of my daughters drag race. On my bad days, they take care of me, they take turns cooking, or ordering in, cleaning, laundry, whatever needs to be done. That allows me to lay in bed and cry myself to sleep when my meds aren’t working, or read, watch videos, even surf the net. There is so much to live for, DO NOT EVER GIVE UP THE FIGHT!!! Being dx didn’t change my life, it just made me realize that I wasn’t really living before, and now I am. I know that for some reason God chose me to live this way, and honestly, I am glad because it has brought my family closer, and happier, though I wouldn’t wish it upon anyone else.

      V in VA

  2. My mom has had Fibromyalgia since i could remember. But i also remember the good days too. Its super hard to seem my mom crying all the time and i always wish i could take all the pain away from her. She’s the best mom, but she doesn’t realize it. I wish i could do anything to help her. My dad doesn’t understand so im all she has, and im on meds for depression. I just can’t takee it anymore. It hurts me just as bad as it hurts her. :/

  3. im so glad i found this web site i didnt think i need 2 get it out or have support system but wow i found other ppl that can relate 2 me and have had it since i was 22 had my daughter 05 i tried 2 be strong super woaman and mom but i have my bad flare ups like everyone else i was trying 2 juggle work school new baby ect and i needed answers and help they made me feel crazy lost and alone but i finally got answers and was in shock but glad i was not nutts lol every since i do as they say diet work out swim take there meds but i am bigger than i was when i was prego and i have 2 try 2 stay positive and push on so my daughter doesnt notice my pain and all doctors appointments because it messed w me and i have more health issues diabetes neurathpy arthritis thyroid ect it is alot to take in and frustrating but i pray one day there will be a cure this pain is out of this world and i lose alot of sleep very tired alot and dont eat much so i feel for all of you who go threw it to

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