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Lollie’s Story (Endometriosis)

Yellow Ribbon EndometriosisMy story began only 5 months ago. I was admitted with pain on my left side at our local ED and soon they got me in an ambulance on the way to the bigger hospital where I was diagnosed with appendicitis. So as usual with that type of thing I went in and had it taken out. But when I woke up in recovery, I can still remember those words that the surgeon told me “You have endometriosis and you might be infertile.” My world came crushing down. I have never heard of this disease, how I can I have it and never have known about it. But after the surgery the nurses came by and explained to me what it is and what needs to be done. They didn’t tell me how bad it was or anything like that. They just said you need to see a gynecologist fast. So they made an appointment for me at the local clinic.

Took 3 months to get seen and the pain on my left side continued even after they took out my appendix and I was admitted to ED more then twice because of the pain and was drugged up with pain killers and sent home because they couldn’t do anything for me. So when my appointment with the gynecologist finally came he told me that one of my fallopian tubes was already destroyed because of this disease and that I need to get surgery to see how bad it really is and to let him remove what he can without making me infertile. That just killed me. My chances of having my own children are going down with each visit and what will happen when he does go in there? What will he see?

My very first surgery is booked for the 5th of August 2011 and I will see if my worst fears will come true. Endometriosis is a horrible disease and I wouldn’t wish it upon my worst enemy. Because going through this mentally is horrible. I haven’t been able to sleep properly since I found out I had it and the bad news just keeps on coming. Please wish me luck for my surgery. I really want to be able to have my own kids one day. We warriors that suffer from this disease need to stick together and fight the good fight. We shouldn’t let this disease win. We are the winners. 🙂

Submitted 7-28-11

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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  1. kelly

    I know how you feel with the endometriosis as I was diagnosed in jan with the signs and confirmed in march that one fallopian tube was completely blocked and other is close to being completely blocked, by exploratory surgery! It was heart breaking and still is at times to know I may never have my own children….I am currently under tx with medication and the dr is hoping this helps control my pain. Best of luck to you

  2. annaliese

    I also understand what you are going thur I’m going to be 21 in a month and have been dealin wit this pain since the age of 14 and got told that I had endo at the age 18 so gettin worried about not haveing kids is very painful to me.. I had a laposcope done and my endo is so bad he couldn’t even see anything then I had my tube checked and as of right now they are okay but the scar tissuse from the endo is starting to grow around them which is very scary I have been tryin for 2 years to have a baby and nothing yet so movin on to the next step . I also haven’t had my period for 14 months I have gain 40 pounds since my periods have stop it hurt very bad to have intercourse its a very stressful disease all I wanna do is have a baby with my love one .. Best wishes ill keep u posted

  3. Sheirlyn

    I to went through this about 15 years ago I got treated after years of pain.I to was told by the hospital doctors that I will never have a child . It’s all about finding the right doctors the right time and faith in God. I now have a nine year old son.

  4. Lollie

    Well Ladies, just an update I had my lap and my worst fears were confirmed one of my tubes has been destroyed. Since then I have gotten married to my wonderful husband who has been my rock through this whole thing. We are currently trying to get pregnant we are at our 7 month trying with no success. Will be having more test this month and my pain is slowly returning. So might need another lap soon. We will see what the future holds for me and good luck with the fight ladies. It has been a roller coaster for me and I dont see it ending any time soon. I will not let this disease win.

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