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Lesli’s Story (Uterine Cancer, Breast Cancer)

Peach RibbonHi Ladies. I had the DaVinci robot surgery January of 2013. Since they found cancer in my uterus I had to have a second robot surgery in March 2013. I have had several problems since my surgeries.

Right away I had the painful urination and urinary retention. I had a lot of cramping and very severe pulling pain in my pelvic area. My incisions hadn’t healed all the way from the first surgery so when they went back in for my oophorectomy I had serious healing issues with my incisions. Tomorrow it will be exactly one year since my first surgery and I have severe nerve damage in my whole lower and upper regions of my body.

The small incisions (which aren’t small at all) run across my entire abdomen and are to this day bruised. I mean a yellow, green, and dark bluish hue all the way across my belly. My pelvic pain has never gone away and it radiates around to my lower back and shoots down my vagina. As for sex…yeah right, my poor husband. It burns and hurts so bad that it can bring me to tears. I am seriously thinking of consulting an attorney. Have any of you done that?  Thanks for reading. Any feedback would be much appreciated.

Lesli
Missouri
Submitted 01/02/2014

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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5 comments

  1. Leslie,

    i too had uterine cancer, but i have never heard of the DaVinci at all. i found some very interesting articles on this though. you might want to go back to a second opinion on all of this and also seek legal council. so sorry you are going thru all of this pain…truly not fair or right considering we seek professional help for just that…a professional in their area. stay strong and i hope you heal.

    Hugs,
    Jeanne

    http://well.blogs.nytimes.com/2013/09/09/new-concerns-on-robotic-surgeries/?_r=0

    http://www.nydailynews.com/life-style/health/surgical-robot-scrutinized-fda-deaths-nightmares-article-1.1311447

  2. I also had the daVinci used in my hysterectomy. I had a total due to cancer of the uterus as well. I had issues with the incisions healing, and he was unable to remove my uterus vaginally, so in addition to the five incisions from the robot, I have the large abdominal as well. 10 days after, the same day as my post-op appointment, I got out of my car at home and had a flood of what I thought was urine. It wasn’t, and to make a long story short, the next day I was back in surgery to repair the cuff. I was told that the stitches were not tight enough.

    My surgery was in June 2013, and I still continue to have issues. If I sleep on my back, I can’t roll over to my side without horrifying shooting pains going down the left side of my abdomen and into my groin area. If I sit too long, stand too long, or lay in one position too long, I have lower abdominal pain. To help with the burning you described, talk to your doctor about a weekly low dose of internal estrogen cream, such as Estrace. In low doses, according to my doctor, it is all absorbed locally and doesn’t really have a chance to enter your bloodstream and cause the issues that hormones can for those of us that have had cancer. That is the one thing that I can say has worked for me.

    After having the robot surgery, I can safely say I would not recommend it to anyone, for any reason.

  3. I had the robotic surgery in September of 2010 for cervical cancer. They did a radical hysterectomy and during the surgery that was suppose to last 31/2 to 4 hours ended up lasting 5. During which they cut my bladder and 2 weeks later found out my right ureter tube. I had to be hospitilized for 16 days due to the ureter. I know have a bladder disease as a result which is painful beyond belief. As you can see it’s been 3 years since the surgery and I still have problems such as spotting. I also found out in Febuary of this year the robotic surgery basically burnt my insides up (thermal burns) and keep being told by different Dr’s I have radiation damage to different organs ( I never received radiation for my cancer so this had to also come from the robotic surgery disaster) 3 years and still finding out damage that was done so please do consult an attorney because trust me not only will they get all the answers of what might have been done wrong . I pray you do not turn out like me with ongoing problems from this surgery. One last thing because of the damage done to me I can not hardly get Dr’s to treat me and especially no one to step in with the female problems once they get my medical records. Hang in there and I hope you recover fully

    Charlene

  4. Thank You for your response. I feel like I’m the only one dealing with this. I hate to think there are more women having to deal with this. So much has happened in such a short period of time it’s hard to take it all in. Every opinion counts so again, Thank You!

  5. Thank You to all who have shared your comments. I hope it gets better for all of us!

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