Saturday, December 10, 2022
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Keep The Light In Your Life, Despite Fibromyalgia and ME/CFS

When you first get hit with Fibromyalgia and/or ME/CFS, it seems like your entire life is being brutally robbed.  Sometimes a vast amount of it is stolen.

I mean, I’ve managed to lose the ability to work, the ability to smell, the ability to drive, and the ability to stay awake for more than 5 hours in a row!

But for all we lose, we also gain the ability to find other reasons to enjoy existence.  I’ve started to enjoy fashion and interior decorating, as well as blogging and coloring.  I’d love to be able to garden, but I haven’t quite figured out a body-friendly way to accomplish it.

I have been aiming to live a more environmentally friendly lifestyle, which gives me a sense of peace and joy, as I love the country.  I love to watch films, read or listen to books, and flip through magazines (when my hands or brain aren’t giving me too much trouble!).

The most important thing that I have done since becoming ill is putting my experiences on the front line for everyone to read.  I am candid about every aspect of my neuro-immune illness, and I don’t put a glossy cover on for my family and friends.  Spreading information in the hopes of more research and eventually a cure is my new life goal.

I recommend working part-time or volunteering if you are capable; and if not, attempt to care for those you love in the little ways you can.

Refuse to lose the light in your life!  Choose to fight instead!



This article is intended to convey general educational information and should not be relied upon as a substitute for professional healthcare advice.

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One comment

  1. Barbara Ann Levy

    Small gardens, miniatures, small floral arrangements…..Have a look at the Tiny House movement. Fun and smaller gardens would fly with that group..

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