My name is Juakina and I am 32 years old. I was diagnosed with Mixed Connective Tissue Disease when I was 12 years old. I had my ups and downs battling a disease as a child is sooo different than fighting my disease as an adult. I’m originally from California and in 2008 I was informed that my lungs were attacked and functioning at only 66%. I have 21/2 years of Cytoxan treatment. But I must say at 28 that was scary. I am a mother now, and my daughter was the first thing I thought about, what if this kills me. I sulked for a few weeks before the Holy Spirit put a stop to my nonsense. I starting living with purpose and refusing to be defeated by this disease. In 2011 I moved to Texas so I had to scope out a new team of Doctors. Doctors always start with baseline information, so my new Rheumatologist did a brand new work up on me. The devil got me again, she came back with news that I had overlapping diseases, Mixed Connective Tissue Disease and Lupus 🙁 because I needed a new battle to fight. It’s 2013 and I’ve had knowledge of this for a year or so but it seems to get tougher. My daughter is 12 but I’m still single and want more children. I’m in the midst of a flare up now with my GI tract and no diagnosis has been made or even found. To be honest my spirit is down today. The idea of being a wife and having more babies seems to be getting further and further away. I’m wondering will I ever be healthy enough to reproduce, will any man love me enough to take on the responsibility of a sick mate. I have some praying to do,, LADIES we can be healed Jesus loves us and he will send other people to love us too. We’ve all heard it, ATTITUDE IS HALF THE BATTLE. So lets put on our boxing gloves and fight this thing, better yet let’s knock it out….GOD BLESS YOU ALL! 🙂
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.