So I was diagnosed with ITP when I was 3. I have lived with it, but I never really thought about how others with ITP felt and if what I felt was normal. I was researching ITP and how to cure it and came across this site. It is an amazing feeling to know that others go though just as much as I do. I understand fully that ITP is not as bad as cancer and other disorders and diseases, but I feel that, to be able to help others with much worse, you should be able to help those with not as bad disorders.
I have chronic ITP, which means that I will have it forever. It’s really annoying to explain my disorder to friends, as they make fun of it or brush it off. When I was 5, my kind teacher noticed that something was wrong with me and notified my parents. My mum, a medical practitioner, knew that the problem should be checked by my doctor. My doctor then diagnosed my with Petit Mal, a milder form of epilepsy.
After medication after medication, I was lucky enough to overcome it. I have small episodes and spikes now and then, but they are not as bad. Soon came puberty and periods. Having ITP made periods so bad. I would have to have many tablets to reduce my flow. Sometimes, I would bleed so much that I would pass out. I would have to take days off school and this affected my education. Luckily, I was quite ahead in my academics so I wasn’t that badly affected.
ITP is hard, but with all of us, we will help each other and conquer it together–corny, I know!
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
Just wanted to say, no it’s not corny. You are absolutely right! I don’t have ITP but I think with anything it’s important to share information, get the word out & just be proactive & by doing so just might save someone’s life or help them in some way. Keep up the good work!! I wish you all the luck in the world & will be praying for you!