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Jillian’s Fight Like A Girl Story (Endometriosis)

Jillian's Story (Endometriosis) LRHey, my name is Jillian and I have been fighting endometriosis for years.

I am now 21 and have been diagnosed since I was 18, fighting and searching for answers since I was 15. After countless doctors appointments (over 20 different doctors) and many many tests, I finally found a doctor who would listen and I had a laser laparoscopy where the amount of endometriosis that was found was shocking.

This is such a devastating disease. It’s hard to cope with something so ‘invisible’ when you look just perfect on the outside. I am currently battling to save my right ovary, which is covered in adhesions as well as my intestines, bowels, and stomach.

But through this whole adventure, I have been able to learn so much and meet some amazing girls as well as doctors. I may never be able to have children like I’ve so dreamed of.  I may not be able to live a normal life. However I am working to become an advocate for this terrible disease and help bring awareness to girls and doctors alike!

Jillian
Colorado
Submitted 6-12-2012

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This article is intended to convey general educational information and should not be relied upon as a substitute for professional healthcare advice.

2 comments

  1. Amanda VanDyke

    Keep it up Jillian! I’ve been battling it since I was 18 and finally found a doctor at 26 that would do a laparoscopy. It was at that point the dr I found to do it looked at my husband and I and said “Mrs. VanDyke, 1st I am in amazement that you were not only able to conceive 1 child but 2, 2nd that the OB/GYN did not see this during the c-sections as it covers your ovaries, your uterus and left ovary are fused together with endometriosis and 3rd that you’ve never been to the ER with pain. This is by far one of the worst cases I have seen in 20 years of practice.” By 28, just 2 short years after my 1st surgery I had 3 more laparoscopic surgeries and finally gave in to a partial hysterectomy (kept right ovary). After removing my uterus the found it was filled with admomiosis which I had never heard of but explained why I was starting to look and feel pregnant. It’s been a little over 3 years and I’m looking at losing my right ovary as the adhesions are back and again attached to my intestines, bowels, ect and I’ve started forming giant cyst on my ovary that take months of steroids to shrink. I wish you much luck. It seems there are a lot of people that are still in denial of its existence or how someone could be so sick or in pain when it’s not visible.

  2. Hi Jillian, I’m 34 now but was diag. at 15 w/stage 4 endo & stg 4 cervical cancer after battling sever pain from my 1st period at 12. I’ve been through it all, told I would never have kids but I have 2, 11yr old & 13yr old miracles! Don’t give up or lose faith. Don’t take lupron if asked its a horrible non helping drug that has mad side effects! Your not alone in this even tho I’m sure u feel that way alot! Keep Head up!:-)

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