Hi, I’ve had a mysterious illness the past 4 and a half years. It’s been going on since I was 14. I shared my story about a year ago and just wanted to give an update because it has been extremely tough on me. I am at the lowest weight I have ever been in my life, 108 lbs. I am still stuck at a point in my life where the doctors have not actually found a diagnosis. They are kind of saying gastroparesis because my symptoms match up perfectly, and they found extreme distension in my second CT scan.
After my CT scan, I had a Smart Capsule Study, and that did not show any small bowel obstruction, which would have completely confirmed my gastroparesis. But this test did show a huge delay in the emptying of my lower intestine. The delay in my lower intestine is what is causing my severe constipation, which has only been going on the last 5 months, not the past 4 and a half years of having this mysterious illness. So that test didn’t give many answers.
I was on domperidone a few months ago, and that did not make a difference whatsoever. For the past 3 weeks, I have been on Marinol, Remeron, Linzess, and Prilosec. I have also been taking ginger capsules every day, along with my medications. So far, no change in my illness, other than going to the bathroom a slight bit more. I now have more gas, pain, and distension in my stomach because of these meds.
My symptoms these last 4 and a half years include vomiting 20-30 times a day, 365 days a year, an extreme amount of pain in my entire abdomen, struggling with breathing normally (may be because of my exercise-induced asthma), extreme fatigue, feeling EXTREMELY WEAK, unexplained bruises, extreme dehydration, extreme bloat, and feeling full way too quickly. The doctors just don’t seem to be paying attention to how much weight I keep losing and the fact that I ABSOLUTELY DO NOT EVER KEEP ANYTHING DOWN. I mean ANYTHING AND EVERYTHING WILL NOT STAY DOWN. I am not gaining nutrients, and I am slowly fading away. It has been so hard, and it just keeps getting worse. I am trying my best to stay happy and strong, but it is so difficult…
Read Jessica’s previous Power Story post here: https://www.fightlikeagirlclub.com/jessicas-fight-like-a-girl-story-gastroparesis/
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.