My name is Hailey, and I am 16 years old. I am new to this world; I was diagnosed with Juvenile Myoclonic Epilepsy only months ago. I had a grand-mal seizure for the first time a couple months before being diagnosed. Turns out I’ve been having seizures for years, but I didn’t know it. My myoclonic seizures mainly happen in the morning and they can last for a half an hour sometimes. I thought that everyone had them… But I guess not.
I was started up on medication and I am almost completely seizure free, which I am SO thankful for. But there’s something that bothers me about epilepsy more than having seizures: the stereotypes. I feel like I have to hide it because everyone thinks that people like me, like us, are freaks. They assume that I can’t do anything and that I can’t be in the same room as a strobe light. Kids my age don’t see past my ‘disability’. I wish that everyone would know what it’s like to have epilepsy, so then I could stop hiding. I want to see the entire world wearing purple.
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This article is intended to convey general educational information and should not be relied upon as a substitute for professional healthcare advice.