Battling this since I was 12, I have been told many things by many different doctors. Just some examples:
“You’re too young to have this.”
“Scientifically, your problems can’t exist.”
“It’s just a coincidence you landed in the ER.” Et cetera.
Let me be clear. If you feel something is wrong, please keep searching til you find the right doctor to believe you. It took me six years to finally find a specialist who believed me. When I had my first surgery to diagnose that I, in fact, had endometriosis, my doctor said it was so bad I had scarring from having it since I was young.
Now, if the doctors I went to first had believed me, many things could have gone differently. I was put on hormone injections to make my body go into menopause at the age of 19 to try to slow down the endometriosis. By this point, I was told I had to make some big decisions. My chances of having children where slim, and if I was at a point in my life to make the choice, I should try to have a child before it was too late. I thought long and hard on where I was in life, and at 19, I was in college for nursing and thought I was heading in the right direction. I talked to my boyfriend at the time, who is now my husband, and we decided that we would try to have a child now, for fear of never having one if we waited. We tried and tried, but nothing was going right. I still suffered every day with cramps and constant heavy bleeding. Then we decided to get fertility treatment. The day I went in for fertility treatment, we found out that I was 2 weeks pregnant, and so I was blessed with a miracle baby–my beautiful daughter, Willow.
Six months after having my daughter, we found out we were pregnant again, this time with a beautiful baby boy, Dean. I was told I may never have children, and for many suffering with this disease, that is true. But try not to give up on hope if that is what you truly want. I am blessed to have been able to have two beautiful children, but now, my endometriosis is kicking back and becoming really bad again. After having two periods lasting over 30 days, I had to go back to the doctors for help. I had the options of going back on the injections (I decided not to, due to all the horrible things I went through being on them the first time), having a hysterectomy, or trying a high dose of birth control hormones. My husband and I are struggling with the choice to get a hysterectomy, but we know it is something that has to happen in the near future.
For right now, I’m trying high dose birth control and may possibly need another surgery to scrape some of the endometriosis out. Endometriosis is not just something that causes you painful periods, but it also affects mental health. I have found myself going up and down. Depression is a huge factor. I just want to say that anyone with endometriosis is a very strong, amazing person, and I want you to know you are not alone, no matter how old or young you are. It is not just in your head. When I found out I had it so young, I felt so depressed and weak, that I may not ever be able to have a family, and that I was a defect. I couldn’t have been more wrong, and I know that now.
It has been an inspiration hearing some of the stories on here about other people with endometriosis. My goal is to spread awareness and let other women and girls know that they are not alone and to keep their heads up and keep fighting.
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.