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Elaina’s Story (Endometriosis)

Elaina's Story EndometriosisBattling this since I was 12, I have been told many things by many different doctors. Just some examples:
“You’re too young to have this.”
“Scientifically, your problems can’t exist.”
“It’s just a coincidence you landed in the ER.” Et cetera.

Let me be clear. If you feel something is wrong, please keep searching til you find the right doctor to believe you. It took me six years to finally find a specialist who believed me. When I had my first surgery to diagnose that I, in fact, had endometriosis, my doctor said it was so bad I had scarring from having it since I was young.

Now, if the doctors I went to first had believed me, many things could have gone differently. I was put on hormone injections to make my body go into menopause at the age of 19 to try to slow down the endometriosis. By this point, I was told I had to make some big decisions. My chances of having children where slim, and if I was at a point in my life to make the choice, I should try to have a child before it was too late. I thought long and hard on where I was in life, and at 19, I was in college for nursing and thought I was heading in the right direction. I talked to my boyfriend at the time, who is now my husband, and we decided that we would try to have a child now, for fear of never having one if we waited. We tried and tried, but nothing was going right. I still suffered every day with cramps and constant heavy bleeding. Then we decided to get fertility treatment. The day I went in for fertility treatment, we found out that I was 2 weeks pregnant, and so I was blessed with a miracle baby–my beautiful daughter, Willow.

Six months after having my daughter, we found out we were pregnant again, this time with a beautiful baby boy, Dean. I was told I may never have children, and for many suffering with this disease, that is true. But try not to give up on hope if that is what you truly want. I am blessed to have been able to have two beautiful children, but now, my endometriosis is kicking back and becoming really bad again. After having two periods lasting over 30 days, I had to go back to the doctors for help. I had the options of going back on the injections (I decided not to, due to all the horrible things I went through being on them the first time), having a hysterectomy, or trying a high dose of birth control hormones. My husband and I are struggling with the choice to get a hysterectomy, but we know it is something that has to happen in the near future.

For right now, I’m trying high dose birth control and may possibly need another surgery to scrape some of the endometriosis out. Endometriosis is not just something that causes you painful periods, but it also affects mental health. I have found myself going up and down. Depression is a huge factor. I just want to say that anyone with endometriosis is a very strong, amazing person, and I want you to know you are not alone, no matter how old or young you are. It is not just in your head. When I found out I had it so young, I felt so depressed and weak, that I may not ever be able to have a family, and that I was a defect. I couldn’t have been more wrong, and I know that now.

It has been an inspiration hearing some of the stories on here about other people with endometriosis. My goal is to spread awareness and let other women and girls know that they are not alone and to keep their heads up and keep fighting.

Elaina
Pennsylvania
Submitted 04/07/2016

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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3 comments

  1. I started suffering from what I would later find out, was endometriosis, after the birth of my 3rd child and a following tubaligation. Having experienced giving birth to 3 kids with my 2nd one born ‘Frank Breach’, which means bent in half, butt first and naturally…I have to say that what I experienced with endometriosis was THE MOST INCREDIBLE AND INDESCRIBABLE PAIN EVER!
    I spent the next 27 years with monthly agony so bad it rendered me completely incompacitated, with ‘cramps’ that had me waking up at night crawling back up against my wall in attempts to climb away from the pain inside. I swear it was exactly like giving birth to a phantom child that I could feel coming out of me, but of course nothing ever did. Unfortunately for me, I was living a remote lifestyle on an island in SE Alaska and just never could get to a real physician for a real medical diagnosis or help for a cure. I just learned to live with it and around it and ate a lot of Tylenol (which didn’t come close to killing the pain and I later found out it was very bad for my liver).
    As much as I did not look forward to getting old, I felt as if a miracle happened on the day when I realized that all that pain was over, with the end of my menstration years!
    I am 52 now and have been pain free for 3 years..after a total of 27 years of sheer hell.
    I read all these postings about what you girls are going through and I can absolutely relate and sympathize with your plight… You are so much more aware than women of my generation who were basically left to suffer in silence (besides the night screams left in our pillows).
    Pay attention to your bodies ladies. They completely tell you if something is wrong and in this day and age there is no need to suffer in agony as I had to do.

  2. I had a complete hysterectomy in the mid-90″ s and was told Endo is impossible to diagnose until they cut you open.

  3. Brigitte Estelle

    Hi Elaina,

    ☆★☆★☆★☆★☆ Congratulations on being a mom !! ★☆★☆★☆★☆★☆

    Keep writing we need more HEROES like you in this club full of great fighters! Thank you for sharing your thoughts, your informative yet personal story. Your positiveness is contagious!
    What a courageous, beautiful, strong fighter that you are ! Your husband and your chidren are blessed to have you in their lives! ♡♥♡♥♡♥♡

    I wish you well!!

    With love from Canada,
    Brigitte Estelle
    xx

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