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Diana’s Story (Endometriosis)

Diana's Story (Endometriosis) LRMy name is Diana. I’m 23 and I was diagnosed with endometriosis on January 21st of 2011 which was when I had my lap procedure done.   I had always had painful periods growing up even though my period started at a normal time for a girl. It wasn’t until 2 years prior to my lap surgery that the painful cramping began.

Then, things started changing. The one I noticed right away was that I was having problems with bowel movements as they became more and more painful. At that point, sex also started becoming more painful at times, but was more frequent the closer it came to my lap date. I also had more issues at work in terms of my pain, and even socially, as I’d be at work or out somewhere and I’d have to duck into a bathroom for a long period of time while the pain subsided enough to where I could go back in and work. The point that drove me to actually talk to my gyno about it was when I was at my boyfriend’s place and I dropped to my knees in pain and was bawling.

When I went to see my OBGyn, she was so understanding and knew exactly what I was talking about and it made me feel better knowing that someone didn’t think I was crazy or that I was just having really bad period cramping.  They did the lap procedure and found me to have mild endo, which was good, but they informed me, and I have since found out, that there are microscopic endo cells that they can’t get and, even now, I can feel it sometimes though not nearly as bad as I used to. I still wanted kids but didn’t want to be placed in menopause state so I went on the Depo Shot. I’ve been on it now for 9 months and during this 9 months I’ve only had pain associated with it maybe 3 times.

I know that there’s always the risk that it can come back, and I’m a bit worried in the future of not being able to have kids, but I’m still going to fight on and make it through no matter what. I wish you ladies the best in your fight against endometriosis and I hope that one day there is a cure for this that completely reverses and eliminates it.

Submitted 12-6-11

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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  1. jessica bristow

    I have Endo n since finding out I have it I have also found how many woman suffer from this. I don’t have insurance, since so many woman have this they need to make it easier to get surgery for.

  2. Laura

    If you ever need a friend to talk to email me… Endo is no joke and I wish no one had to suffer with it… This website is very helpful….
    Xo Laura from NYC!!!

  3. Daina W

    I wanted to thank you for sharing. We are pretty much on the same page. I also had tough periods since I was young. The last two years have been a nightmare. I couldn’t do well at work because of the pain. I lost my most recent job because of it. I just had my first lap yesterday and they found that I have stage 1 endometriosis. I will know more when I speak with my doctor. I too worry about the future and how this disease will affect the rest of my life.

    I really wish you the best of luck. Your story is rather encouraging to me.

  4. Rhonda

    Hi. I would like to say that at age 24 I too was diagnosed with endometriosis. The pain became so severe that my gym did an ultrasound. He found that I had a “chocolate” endometrial cyst the size of a grapefruit that was leaking. I was sent to surgery…cyst removal, left ovary removed, 3/4 of the right ovary removed, endometriosis “cleaned up”. I was put on Danocrin, a hormone for a year, then put on birth control to simulate pregnancy…this would keep the endometriosis in check. 28 years later and having only 1/4 of an ovary I am blessed to be the mother of an 18 year old daughter. Never give up hope on becoming a mother.

  5. Kelly

    I was 24 when I was diagnosed with severe endo. I fought this painful disease for two years. After two laproscopies and a dnc to remove the endow tissue and several cysts one of which was pre-cancerous and the size of a grapefruit I made the decision to have have a total hysterectomy. During my two year fight I tried drop. birth control pills and was unable to work as I bled everyday for a year and a half. I feel for anyone going through this just please keep fighting and by all means keep the faith.

  6. Jenny

    I was diagnosed at 25 years of age with Endo and I had a 3 year old daughter at the time. I too felt like I was going crazy and it was wonderful to know that it wasn’t all in my mind, but very sad when they told me that I would never have any more children. There wasn’t much they could do back then so I did a lot of reading and decided that if I didn’t have a period, the endo couldn’t spread anymore, so I stayed on the pill continuously for 4 years (no break – no bleeding – no pain). I then went off the pill too see what would happen and got pregnant. After my second child was born, I had the implanon put in and was very lucky that it agreed with me and spent 3 years of no bleeding. A naturopath told me to remove it and try natural ways, and boom I got pregnant again. I had 2 more implanons and now have a mirena in and no more pain, no periods, 3 very beautiful children and @ 42 years of age am happy to see that there is so much information and help out there.

    Never give up on your dream of having children and keep reading and researching and speaking with other women and your life will be fuller.

    Thank you for sharing xo
    Jenny from Cairns, Australia

  7. beth smitb

    Let me start off by sayin im 38 yrs old n i suffered from this az well i was diagnosed at the age of 22 after hvin 2 miscarriages.. i had to hve a dnc done for them at tht time they removed 2 cysts from my ovarys n i was told id probably nvr hve kids well by the grace of god i hve 2 beautiful children but after hvin my son who is now 10 i had 2 more surgeries to remove the endometeroies… i hve had a procedure done calld novasure to burn the linin of my utures so i nolonger hve periods n no more pain ive been pain free since 2007 …. so lady dont ever give up there is help out there

  8. christina babur

    Live life as you want too. I am now in my early 30’s and i had great times so far . In the past there was a lot of suffering i lost my dad to cancer my mom to stroke and one ememerency c-section but here i am with 2 little ones and making every day best all the best to the prayers to girls going through health conditions.

  9. Amanda Squier

    I am 30 years old and I have had Endo since about the age of 21. It was not bad at first I got pregnant and had my son at the age of 23. At the age of 27 I was rushed to the hospital at 1:30am in severe pain, I could not move and I felt like I was going to die. The did a lap on me to find out it have gotten severe. All of my female organs are glued together and twisting. I have gone through 2 surgery’s so far for a scrape and burn and to unglue my organs from one another. As soon as insurance approved that the hysterectomy was medical unnecessary I lost my job before I could get it done. From what I understand 1 in 6 women have it and don’t even know it., but that over 40% of women get this, so yes I am shocked they have not found a better solution for it yet.

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