Hi, my name is Danielle. I am a fan of the Facebook page, Fight Like a Girl. This story is a little different. I have a very rare syndrome called Superior Mesenteric Artery Syndrome. Only around 500 of us in this world have this, from the latest studies. I do believe that number has grown. The mortality rate is 1 out of 3!
I was diagnosed in 2010 and have since then had the corrective surgery for this issue, but there will never be a cure! To me, the surgery helped only a little bit but that’s better than nothing! Since then, I have also been diagnosed with pancreatitis, gastroparesis and fibromyalgia – on top of SMAS.
I fight all this every single day. I am supposed to be heading back to the surgeon to get another feeding tube placed, but I’m waiting to pick up insurance again before I go back to any doctors. I refuse to pay that bill. Thanks for listening.
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This article is intended to convey general educational information and should not be relied upon as a substitute for professional healthcare advice.