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Cari’s Fight Like a Girl Story (GP, RA, Sjogrens, Raynauds)

Cari's Story GP RA etcExactly 1 year ago, my life went from gaining a 1st Degree Black Belt in Taekwondo to a life of pain. Doctors kept thinking it was all in my head, but I pressed on for answers. One visit to a rheumatology doctor brought forth a diagnosis of Rheumatoid Arthritis, Sjogrens, Raynaud’s, and multiple organ prolapses. In April, I had a rectocele repair that would rupture 3 weeks later.

In July, I went to Mayo to get 2nd opinion regarding prolapses. I had a hysterectomy while there. Back home, 3 weeks after surgery, I couldn’t eat or drink without nausea, vomiting, and extreme fullness. Local doctor thought it was delayed gastric emptying and said to try Reglan. I had a reaction to it and had to discontinue.

Back to Mayo, GI doctor did a scope, confirmed gastroparesis and said, change your diet. Today, in October, I ended up in the ER for extreme pain. They gave me a shot, and then she said she needed to go deal with “real emergencies.” I’m in so much pain and have nowhere to turn. Doctors don’t believe my pain, and I’m tired of trying to prove I am sick.

Cari
North Dakota
Submitted 10/27/2014

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This article is intended to convey general educational information and should not be relied upon as a substitute for professional healthcare advice.

3 comments

  1. Dear Cari,
    How I wish I could be there to hold and hug you for your misery, this is a journey that you have to keep notes to remember what to do and what not do to , remembering good times when you are down and confused is a joy to have around you to remember your great times ! I am not going thrunajourney as you are and my sister Diane Gaudreault in the lymphoma section on this club, but I am trying to change my eating habits to be healthy, so I have start reading this book ” oh how she glows ” to be feeling better for myself, I hope that this can give you strength , Be brave and beleive your the one who can change things for the better !
    And , for those “so-called” doctors just pray for them, for their intelligence and humanity is hidden behind their ignorance !!

    Brigitte Estelle Gaudreault
    Canada

  2. Dear Cari,

    Two years ago my 14 year old was diagnosed with gastroparesis. After many trips to the Children’s Hospital of Houston and multiple doctor appointments, we decided to treat it by homeopathic. We found a Chinese medicine doctor, a chiropractor and two hemeopathic doctors. She lost over 50 pounds but were able to turn it around and now is back to herself and eating everything. We found a girl on Youtube named Tess under ‘Gastroparesis Cured – My Journey to Recovery’ that got us started in the right direction. We did everything she did and pushed through it. Please feel free to contact me. I would be happy to help anyway that I can.

    You are in my prayers.

  3. I went to 12 years of hell, doctor to doctor… No answers, except it was all my head. they finally labeled me with fibromyalgia, acute anxiety disorder and depression and was telling me I was bringing the pain on to myself. what a bunch of BS…. There were times I went through months a feeling fine and then BAM it hit me again for years I went back and forth. then I was diagnosed with Sjogrens, which i think is another made up illness basically saying I don’t know what you have. soon I started to become intolerant to gluten. When I gave up glute I start to feel better…then months later again, so I realized I had a problem with fructose. first 30 years and more I have had chronic Lyme disease. nothing more nothing less..what was happening to me was I was going into remission and I was rebit again by a tick/nymph…. I suggest you research chronic Lyme disease. Do not go to your job to do not go to ainfectious disease doctor. the tests are invalid, 1 out of 10 people are diagnosed correctly. you need to go to a lyme literate doctor for proper testing for lunch disease and co infections. I am on Facebook if you would like to email me, I also have my own Facebook page entitled living with chronic lymes plus other groups I have joins to help me.

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