Hey everyone! My name is Bronti. I’m 19 and here is my story! My bladder problems started when I was a kid. I would only pee once or twice a day. I just never had the urge to go. My mom took me to the urologist and they told me that I had a stretched bladder and that was it.
Years passed and when I got to high school, I was getting frequent bladder infections. Some were showing up as infections through a culture and others weren’t. I was having the pain of what I thought was a bladder infection every month or less. I went to several more urologists that didn’t know what was wrong with me. By then I was experiencing burning, pelvic pain, back pain and frequent urination. I finally found a doctor who thought it was a good idea to look inside my bladder to see if I had interstital cystitis ( painful bladder syndrome ) which is a long term chronic inflammation disease of the bladder that have the symptoms of a bladder infection. After my cystoscopy my doctor diagnosed me with interstital cystitis.
It is now June and it has been 9 months since my diagnosis. I have moderate to severe IC and I don’t work or go to school due to the fact that I am in pain every day. It is hard to do normal daily activities. Going shopping is harder because of the pelvic pain I experience with just walking . Every time I pee it is extremely uncomfortable due to the burning. I can not have anything acidic , caffeine, artificial flavoring , or different dyes and a lot of different fruits because it makes my bladder worse . I have experienced bladder spasms, sharp pains in my bladder and urinating every 30 to 40 minutes and the bad pelvic pain.
I am on pain medications everyday twice a day and take Amitripytlne every night for my nerve pain.
Interstital cystitis has completely taken over my teenage life, but I do have the support of my family who has been there through it all.
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This article is intended to convey general educational information and should not be relied upon as a substitute for professional healthcare advice.