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Amy’s Story (Epilepsy)

Amy's Epilepsy Story This story is about our eight year old daughter. She has had a long hard life for only being eight. She developed epilepsy at three years old. It came on very quickly. It was a very rough first year, she got very ill, went status (which is seizures that can’t be stopped), and had to be flown two states away to the Children’s Hospital in Colorado.

Nothing would stop her seizures, not even an induced coma. At four years old she underwent emergency brain surgery to remove two areas of her brain where the seizures were coming from. After two long months being hospitalized we got to finally go home. We had six amazing months watching her grow and thrive, then her seizures returned worse than before.

It has been a long four years with tons of medicines added, but nothing has helped. There is nothing left to try, except for another more evasive brain surgery, the most evasive surgery done.

Currently, we have been in the hospital just shy of two months again. This time the surgeon removed the entire right side of our daughters brain, a full right hemispherectomy, in hopes to take her seizures away for good. She is now paralyzed on the left side of her body, and is going through intense rehab to learn how to function with these new disabilities. We pray it works and that she will be able to learn to enjoy life. She has definitely taught us all just how to “Fight Like A Girl.”

Amy
Nebraska
Submitted 09/15/2013

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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