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Aisha’s Story (PCOS)

Teal RibbonI’m 20 now, and just after my 18th birthday, I got diagnosed with PCOS. Just over three years ago, I was on the pill to regulate my periods because I’d had a period every 6 months, and it would be heavy. I came off the pill about 2.5 years ago because, in the short time I was on it, I put weight on. And when I was 17, something happened to me, so since then I’ve been depressed and had anxiety, not wanting to leave my mum’s side or even my house.

Because I’d not go out, I put weight on, and I would exercise. I bought loads of stuff to help lose weight. Nothing worked. I was always doubled over in pain, so I went to the doctor. He sent me for blood tests and a scan which came back that I had PCOS! I was 18. He didn’t tell me anything about what it is, just little cysts on my ovaries. I then got sent to a gynecologist who then confirmed it again, and I went back to the doctor’s saying, I’m having really bad pains. He then sent me for another scan which came back, and he told me it didn’t show why I had pains. Every time I’d go to the doctors I’d tell him about my pain and how bad it was getting and how often it occurred. He sent me away with tablets that didn’t work. Now recently, he’s told my I have IBS which I know I don’t! I just feel like he’s not trying to help me, nor is he trying to give me the right treatment.

I now have a boyfriend, and one day we hope to have our own family. We don’t use protection because I feel in my head that I can’t get pregnant, so what’s the point?! Anyway, I’m just wondering, has anyone else had a doctor like mine or really bad pains, dizziness, nausea, back pain, groin pain, constant headaches etc. and if anyone has any tips on how to cope with these pains? Would mean loads. Thank you in advance. x

Aisha
England
Submitted 01/10/2015

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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3 comments

  1. I don’t have PCOS and am still in the process of getting properly diagnosed with some of my health problems. I can definitely relate on the Doctor not trying to help. I had a Psychiatrist like that. I have a new Psychiatrist now. As for non-mental health related, I finally finally found a Doctor who wants to find out what I have. He has already sent me for two tests my other Doctors never sent me to get and he said he doesn’t think I’m crazy and wants to find out what I have so that he can come up with a treatment plan. After trying to find the right doctor for almost 4 years and have finally found the right one, I feel so blessed. Don’t give up!

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  2. Hi Aisha,

    I don’t have PCOS, but I do have Endometriosis, which I was diagnosed with in January 2014 at age 20. It was tough for me to get doctors to believe me as well and I would probably still be undiagnosed if it wasn’t for my Mum, who also had Endo, to fight alongside me and keep knocking on doors until someone took the time to listen.

    Please don’t give up! You shouldn’t have to live with severe pain and all your other symptoms with no treatment options or relief.

    My advice would be to get a second opinion – maybe from another GP or another Gynaecologist? It could also be good if maybe you contacted a support group or organisation that supports women with PCOS, as they might be able to recommend a Doctor or give you some advice?

    I’m not in the UK, but I just googled and came up with this organisation – http://www.verity-pcos.org.uk/. Maybe you could contact them and see if they can help you?

    Don’t be scared to go to another doctor or someone for advice. I’ve found over the last year that you really have to advocate for yourself, so go and find someone who actually wants to help you live a more normal life. It will be worth it in the end. Also, remember you are entitled to have a support person with you at medical appointments. I definitely have found it helpful to have someone to support me.

    Sending you a hug and I hope things will get better for you soon.
    Caroline

  3. Hi Aisha,
    My name is kifah and im 25 years old, i have PCOS and i know exactly what your going through. I was diagnosed with it four years ago, at first i took the period medications you mentioned and i put on a lot of weight and since i was trying to get pregnant i took hormonal treatment for years and gain even more weight that im still struggling with. I suffered -and still- from nuasea, back pain and specially headache!.
    And having everyone over your sholder telling you that you need to lose weight to feel better like its an easy thing to do is only depressing, i know this not much of a help but all i can tell you that im still trying, fighting each day through. As for my headache i avoid the triggers as best as i could, i take my metaformins regularly, i go to the gym 5 times a week. I try my best to avoid sugars because its the worst for PCOS.

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