My story so far… I had an emergency appendectomy in November of 2011, only to be told in February it contained a rare cancer called Neuroendocrine Carcinoma.
After googling and joining various cancer groups and Facebook pages, I was still none the wiser. My doctors and my surgeon said that as a precaution, it was decided I would have a right hemicolectomy (removal of half my colon). I had the surgery in June.
Last week, I saw my surgeon for my histology results, and my colon and lymph nodes were clear. I should be jumping for joy…right? I am half jumping. I don’t feel totally re-assured. So with some detective work, my husband and myself have found a NET specialist in London, and with my doctor and surgeons help, will hopefully take me on. The waiting continues.
I writing this story to highlight this cancer, as it is often mistaken for other illnesses, such as IBS, Crohn’s disease, and asthma. It is known as the camouflaged condition or the Zebra (just because you hear hoof noises, don’t assume its a horse). I was ‘lucky’ mine was discovered. Ding ding next round 🙂
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This article is intended to convey general educational information and should not be relied upon as a substitute for professional healthcare advice.