Last July, I was diagnosed with gastrointestinal stromal tumor (GIST) of the rectum, a rare sarcoma in a very rare location (only five to 25 per year). It was surgically removed on 9/11, but the growth rate indicated that it was likely to recur or metastasize. So I was started …
Read More »Victoria and Alan’s Power Story (Lupus and GIST)
I have Lupus and Scleroderma and my spouse has GIST (gastrointestinal stromal tumor) stage 4. This is is a very rare cancer affecting the digestive tract or nearby structures within the abdomen. He was diagnosed in 2004 and the tumor was removed only for the cancer to return in 2006 and spread to …
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