Thursday, September 23, 2021
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Survivor Stories & Information

Fight Like a Girl’s collection of Power Stories are written and shared by real women who have overcome or are still fighting cancers, chronic illnesses, or other life altering adversaries every day. The stories found here are a source of empowerment, hope, and education through the discussion of signs, symptoms, treatment processes, inspirations of strength, and individual experiences of each warrior’s personal and unique fight. Survivor stories are equally powerful, written by women who now advocate for others still in the fight.

Read the inspirational stories below to find the support you need in your battle, or the encouragement to share your story with us. Immerse yourself in our community of warriors and join in — we can’t wait to meet and celebrate you.

Tahnie’s Story (Cystinosis)

Tahnie's Story (Cystinosis)LR

When I was 16-months-old, on the cusp of toddler-hood, doctors told my mother and father that I would not live to see my 10th birthday. I was diagnosed with cystinosis, a condition so incredibly rare, that the majority of doctors have never ever heard of it, let alone have any …

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Jessica’s Story (Cystinosis)

Jessica's Story (Nephropathic Cystinosis, Kidney Transplant)

When I was 22 months old, my parents were in the middle of a fight to find out what was wrong with their daughter. My mom (my fight-like-a-girl role model!) visited doctor after doctor and endured multiple misdiagnosis’ before finally hearing the word “cystinosis”. When she and my dad looked …

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