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Rachael’s Story (Cystic Fibrosis)

Rachaek's Story (Cystic Fibrosis)My parents were told that I had CF when I was just a few months old. My prognosis was that my life would end by the age of six.  When I reached six the doctors said I would live until I was around 16. Yet here I am almost 32 years later and have been pretty healthy.

I of course have been through the ringer with the treatments, medications, and weight issues, yet I am still alive and kicking booty. I was told that I could not have children and that I needed to be very careful of what I chose for my career. Despite all these negative comments and expectations, I am married to my best friend, we have a beautiful daughter who is now 11, I have graduated with an associates degree, and I am working on a bachelors degree with plans to get a masters degree. I love working with children, which is not the “ideal” career for us “Cfers” but I have been in this field since I was 18.

I plan on becoming a speech therapist. I have always been an outgoing, positive person who hears negatives and uses that to show people I can accomplish anything as soon as I set my mind to it. I strongly believe that while I was younger the persistent efforts of my parents, sister, and family kept me going and fighting. Then with the surprise of our daughter in 2002 that made my desire to beat CF even stronger.

I am in the beginning stages of starting my own organization that helps “Cfers” with their daily lives and sends care packages when they are ill. = ) I want to show people that the fight is well worth it and send some reasons to keep fighting their way.

Rachael
Florida
Submitted 09/10/2013

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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5 comments

  1. Rachael,
    Your story is beautiful and inspiring. Keep up the fight and the positive outlook on life!

    Love,
    Joy

  2. Rachael, You go girl. I’m proud od you.

    aunt Jo

  3. Amazing. You are so strong!

  4. You always do fight like a girl. Just keep kicking butt xox

  5. keep up the good fight

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