In 2005, I was diagnosed with Brugada Syndrome, a heart disease that causes dysrhythmia. The doctor implanted a defibulator/pacemaker to help control the dysrhythmia. In 2008, I was diagnosed with lupus. Before my diagnoses, I experienced fatigue, joint pain, and pain in my spleen. My sister-in-laws’ wedding was coming up in October of 2008. In June, we went to try on shoes for her wedding because I was the maid of honor. My feet were swollen that day, and after I got to the mall, I didn’t feel well at all. I went to the emergency room and found out my kidneys weren’t functioning correctly, my spleen and liver were enlarged, and I was anemic. I was admitted to the hospital and received several tests. After a week in the hospital, the doctors didn’t know what it was, so they sent me to the Ohio State University Medical Center. The doctors at Ohio State eventually found out what was wrong. I spent another two weeks there.
A few months after finding out I had Lupus, my husband lost his insurance. My medication was too much for us to pay for. I was put on a different medication for my Lupus, which caused it to flare up. I was put back on the immunosuppressant I started on. I was able to get help paying for my medication, but I still had to pay for doctor appointments and being admitted to the hospital, as I had to go to the emergency room several times. I tried to apply for Medicaid, but was denied because my husband and I didn’t have children. The doctors at Ohio State eventually helped me get Medicaid a year and a half after I was diagnosed with Lupus. Within that time, I was in the hospital several times. My lupus had flared up, causing my potassium level to raise a few times. I have had two kidney biopsies, a liver biopsy, and two blood infusions between 2008 and 2010. I have been on several medications since then. At the moment, I am taking about 20 pills a day. My lupus has been under control since 2010.
In 2013, I had to receive a mechanical valve in my aortic valve, after finding out I would need one two years before. The surgery went well. I felt so much better after having the surgery. In 2014, I had to replace my defibulator/pacemaker because I had it in for 9 years. They usually last about 10 years. I had to get the leads replaced because there was a recall on one of them. Usually the doctor would only replace the box, but the leads had to be replaced, too. This box lasts longer than 10 years and is smaller in size. I had to spend longer in the hospital than anticipated because I got a fever. I felt fine for awhile, but started getting exhaustion and dysrhythmia again. I saw the doctor, and he found that I was having more premature heart beats than usual. I was put on a medication, which helped significantly. I still have a few issues with fatigue, but have been doing better.
During this time of trial with my health, I was working part time and going to school part time. It took me 10 and a half years to complete my degree, but I graduated this past May. I have a degree in history and am close to having a degree in zoology, which I hope to finish at a later time. I also would like to become a certified naturalist.
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.
This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.