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Jenna’s Story (Endometriosis)

Jenna's Story EndometriosisHi, my name is Jenna. I am 21 years old. I just recently found out last month that I have endometrosis. It runs in my family, however, no one has struggled as much as I have.

For 6 years, I’ve had horrible stomach pains and really bad periods. I have been to numerous doctors, and all have told me that I have IBS. So for a few years, I just learned how to manage the pain. However within the past year, everything has gotten worse. My periods began to be unbearable, so I thought I had an ovarian cyst and my told my family doctor what was going on. She wanted me to get an ultrasound, so that is what I did.

Two days after my ultrasound, before I got any of my results back, I ended up in the ER because my pain was so bad. The ultrasound showed that I have three cysts on both of my ovaries, but the doctor said my cysts weren’t big enough to be causing the kind of pain I was describing. So I went to my obgyn, and from there he diagnosed me with endometriosis. I will be getting my surgery to treat it next month. I just don’t feel like I can wait that long. This disease has taken over my life. I’m so sick some days, it’s hard for me to get out of bed. I can’t do anything I used to do. I feel like my life is over. And lately, I have been so depressed. I just want to know if I’m going to be able to be a mother someday. That is my dream. I love children. My boyfriend and I have tried and haven’t had any luck. ;( It’s tearing me up inside, and I have no one to talk to about it all because no one seems to understand what it is that I’m going through. That is why I joined this group, to get some support and advice. God bless my boyfriend, he has been my number one supporter through all of this. He has stayed by my side through everything and is trying so hard to make me feel better.

Submitted 04/01/2015

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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  1. Jessie

    Hi Jenna, your story sounds so much like mine. I COMPLETELY understand what you’re going through. I’ve been going through the exact same thing since I was about 11 years old. Like you, the disease has taken over my life. I just had the surgery not even 2 weeks ago,I have endometriosis, adhesions, scar tissue,scarring on my overies, so on and so forth. I’ve had a couple complications(fever for almost a week,and the insition split open) since the surgery and have not had any relief as of yet. (And I’m still waiting for the results of what was in my uterus ) it has been a roller coaster ride for so long,I think I was hoping it was going to be immediate. I’ve been with my husband for 14 years, he is been so understanding and by my side through it all. Don’t give up on having kids ,I’m so blessed to have had 4 children. It kind of helps with the endometriosis and breastfeeding as well. I nursed all if my kids and I had no pain whole I was nursing, it was like I had never had it. If you need to talk ,I can give you my email! 🙂 — jess

  2. Gina

    Hello Jenna! I to had endometriosis….nasty booger! Anyway my symptoms sounded much like yours. I do not want to go into the details of my experience and where it lead me, but what I can say is that I understand the pain! I was admitted (they thought I had Diverticulitis and IBS) and released with still no relief. I did find that I had multiple cysts on my left ovary, the right ovary was twisted and my uterus was almost 3 times the regular size. I’ve been free and clear for one whole year now. Hope is in sight…..just hang on and keep reaching out! YOU do have a lot of support!


  3. Sarah

    Hey Jenna! Everything your describing sounds so similar to me. I’m 23 years old, and I just found out I have endometriosis. In college, whenever someone asked me what I was going to school for or what I wanted to be, I would say my MRS degree and a mom (although I do work in marketing). The thought of not being able to have kids is absolutely terrifying to me. I spent a week crying myself to sleep at night. My surgery is scheduled for this coming Monday. I’m more scared of the chance of not having kids than the surgery. Once I get done with the surgery and I’m all healed, my boyfriend and I plan on trying to get pregnant. I’ve been talking to a lot of people who have endometriosis, and most have been able to have kids without any issues. Some needed fertility treatment, but were still able to have them. I’ve also been told by many people that the best way to reduce the pain and effects of endometriosis is to get pregnant, and once you get pregnant once, it gets easier. Keep your head up! I’m in the same boat. We’ll make it through, and I’m sure we’ll both have the opportunity to have beautiful babies someday. I’d be more than happy to talk with you as someone who’s going through the same thing 🙂

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