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Diana’s Story (MCTD)

Diana's Mixed Connective Tissue DiseaseWell my problems started two years ago, I’m 45 now, and It started with a headache that lasted three days and wouldn’t go away. I went to the doctor and my blood pressure was sky high (170/110) and this was the first time I’ve ever had high blood pressure. I’m a very active girl, I have three boys, my own business, I’m on school board, and involved in being a school sponsor.

So the doctor put me on blood pressure pills and all was good for about two months. Then I got worse, my hand’s hurt so bad they got hot, red, and swollen, my hips hurt, my legs ached, my muscles were very weak, and I lost weight. I couldn’t even bend my knees because they hurt so bad.

I went back to doctor and I broke down crying because I hurt so bad. She did some blood work. All was good except for ANA which was positive and titer was high. The doctor sent me to rheumatologist. He had said I had the classic signs of MCTD 🙁 and time would tell my condition. I forgot my vitamin D was super low, so I’m on vitamin D 50,000 once a week .

The rheumatoligist wanted to put me on all these different medications. I went home and did some research on the pills and there was no way was I taking them. I’ve done some research and went on a no sugar, gluten, dairy, etc, free diet. It’s tough but I’m alive at least. The only real pain I still have is in my hands, they give me so much pain, I do have so many other issues. 🙁

Diana
Michigan
Submitted 09/08/2013

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

This story is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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One comment

  1. I have been diagnosed with Ehlers-Danlos Syndrome with hypermonility. Meaning I am double jointed. There are several classifications of this connective tissue disorder. It is rare and a lot of doctors have not heard of it. We also run very low on Vit D and need to take massive supplements. Have you ever cheked into this?

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