Sarcoma Stories

My life has proven to be a journey of unexpected challenges. I was diagnosed with a rare form of cancer, Rhabdomyosarcoma (RMS), at 3 years old.  I was cancer-free a year after my diagnosis but left with permanent ostomies which aid my bladder and bowel functions but require me to …

Bethani is a 12-year-old, sweet, bubbly, kind-hearted, wonderful Christian girl. She was recently diagnosed with Spindle Cell Sarcoma which resulted in the removal of a baseball sized tumor in her right arm. In order to remove the cancer, the doctors had to completely remove her radius bone and the tendons …

In 2002 I tried rollerblading. After a week and a half my leg was very sore. I tried everything but the boot kept hitting my leg. I was left with a very ugly bruise that took months to completely heal so I gave up rollerblading. Over the course of a …

My name is Kelly and I am a wife, mother, and Air National Guardsman living up here in Watertown, NY. Back in November 2013, I went to Urgent Care because I was having pain in my abdomen so they did an abdominal x-ray. The reason for the pain eventually resolved …

My story starts in 2011. I was working and noticed pain constantly in my left groin and hip. I would lose feeling at times and almost fall. I kept going to the doctors. I was told I pulled something or I had bursitis in my hip. As time went on …

This is actually the story of my daughter who was diagnosed with cancer at age 11. When she was diagnosed they took out half a lung and part of her diaphragm to remove the cancer. When she was asked if she was scared about having cancer her answer was, “You …

Hello everyone I would like to share my story with everyone. I was 33 years old when I was diagnosed with synovial sarcoma. It started in December of 2006, two months after giving birth to a beautiful baby girl. It stared with a lower back pain that led me to …

Last July, I was diagnosed with gastrointestinal stromal tumor (GIST) of the rectum, a rare sarcoma in a very rare location (only five to 25 per year). It was surgically removed on 9/11, but the growth rate indicated that it was likely to recur or metastasize. So I was started …

My name is Mellissa Israel. I found out I had cancer at the age of sixteen. I was diagnosed with an aggressive non soft tissue sarcoma tumor in my thigh on September 3, 2009. I found a lump on my leg one day after color guard/band practice. We went to …

I have stage 3 Sarcoma cancer and where it is located is very rare; it is in my face. I had surgery about 7 weeks ago. They had to open up the left side of my face and take out my pallet. The surgeons took out the tumor and it …