Hi, my name is Kayla. I am battling SMA syndrome and believe that I am on the upswing. I started having stomach problems a few years ago, but I’d beaten them after personal research into a holistic route and using food as medicine. I was fine for quite some time …
Read More »Remeka’s Story (SMA Syndrome)
Sometime this year in July of 2016, I was diagnosed with SMA syndrome. After about 9 months to a year, or possibly longer, I finally had enough of feeling so sick and nauseated from the time I woke up til the time I went to sleep, vomiting here and there, dry heaving more …
Read More »Karen’s Story (SMA Syndrome)
So, seven years ago, I had lap band. I will not deny that, since then, I have still battled anorexia and bulimia. I have maintained the same weight for six years, though I can also say that, for the last three to four years, I’ve experienced this excruciating abdominal pain, which I thought …
Read More »Kelly’s Story (Gastroparesis, SMA Syndrome)
I started out with gastroparesis in Aug. 2013, but it seems as though I have had it for years. My doctor was very neglectful in my treatment, and I got progressively worse. I ended up at the point where every time I ate, I was in pain or vomiting. My GI …
Read More »Katrina’s Story (SMA Syndrome)
I am 19 years old. I thought I was pretty healthy, but when I first started to feel it coming on a few months ago, I was horrified. I thought I had overdosed on nicotine, so I quit smoking. When that didn’t work, I thought I was pregnant cuz I …
Read More »Kristina’s Story (SMA Syndrome)
Hi, my name is Sharon. I am a mom. First, let me say I admire all of the girls that have shared their story! My daughter, Kristina, is 20 years old and has been vomiting multiple times per day since February 26th. This happens every time she eats, not to …
Read More »Katie’s Story (SMA Syndrome)
Hi, my name is Katie, and I am 15 years old. I’ve been having stomach problems for over a year now, and every time my parents would take me to the doctor’s, they said it was a virus. My parents would take me to the doctor’s often. In November, they took …
Read More »Abbey’s Story (SMA Syndrome)
This is coming from a 16-year-old. (: God Bless. (: Whenever I was younger, I would always get sick. Stomach aches, getting sick to my stomach, etc. I weighed 75 pounds for the longest time. Me and my parents both just thought it was just a little virus, always going …
Read More »Alisha’s Story (SMA Syndrome)
Hi, my name is Alisha, and I am 23 years old. I was diagnosed with SMA about 4 months ago. I have had problems with my stomach for as long as I can remember. I was constantly going to the emergency room, at least once a month, throughout my teenage years, usually …
Read More »Tonya’s Story (SMA Syndrome)
My Story: Surviving SMA Syndrome Hi, my name is Tonya Valleau, I’m 21 and was diagnosed with SMA syndrome earlier this year. I’d like to share my journey with you all. Around mid August of 2012 marked the very first time I started getting sick. It was initially a morning sickness, …
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