Survivor Stories & Information

It was the summer of 1974 and I was getting ready to start college in my hometown of Chicago, Illinois; but that summer changed everything for me. I had my first known seizure when I was 17-years-old. My doctors have told me that I probably won’t see a cure in …

Every four minutes, someone somewhere in the United States is diagnosed with epilepsy, and this is the story of how I became 1 in 26. My name is Robyn and I’m an epilepsy patient from Maryland. This is my story. It begins on the evening of December 30th, 2015. I …

I had my first seizure when I was home from college for my father’s funeral. My mom was out, and I went to hop in the shower…and that’s the last thing I remember. I woke up eight weeks later in a burn unit! I was 27, in prime vanity years. …

I have been fighting with Epilepsy for over 10 years now and with that, I have been dealing with migraines. Just recently I found out that I have a blood disorder. However, I wake up with a smile on my face and tell my husband and everyone around me that …

Hi! My name is Robyn, and I’m an epileptic from Maryland, and this is my story. My story begins on the evening of December 30th, 2015. I was going into the kitchen, and then face-planted between the kitchen and the family room. Apparently I’d had a seizure, but don’t remember …

I was just recently diagnosed with JME last month. About 6 months ago, I started having what I called “jerks” right away in the morning. For a few months, it was just here and there I would get them, and now a couple of months ago, it turned into a …

Hi, my name is Lorena. I am a single mother of 4 wonderful children. Twenty days after I had my 4th baby, I had a stroke and lost complete movement of my right side. Lost my speech and some of my memory. I recovered most of it all back, but some of …

My daugher, Addy, had a stroke at five months old; we were told that seizures could happen at any time due to the stroke.  Addy had her first seizure in 2010, she was put on meds and things seemed okay. Over the next few years her seizures became more and more …

Hi, I don’t really think my life is a story to tell because there are a lot of people who have it worse then me but I’ll tell mine just in case it can help someone else out. Back in 1994 (I was eight) my parents, three sisters, and I …

Now, a 42 year old, mother of two, I was diagnosed with epilepsy at 19. After medication after medications and a near death  experience due to liver dysfunction, I’m back on the wagon train. This past weekend, I had a grand mal seizure for the first time in 17 years. …