
Tahnie’s Story (Cystinosis)
When I was 16-months-old, on the cusp of toddler-hood, doctors told my mother and father that I would not live
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When I was 16-months-old, on the cusp of toddler-hood, doctors told my mother and father that I would not live

When I was 22 months old, my parents were in the middle of a fight to find out what was