I often think that I am being selfish when I have a “woe is me” day. I do acknowledge that I am entitled to them because while what happens to me may not be as severe as what happens to the guy next to me, it IS still happening to …Read More »
Life of Agony…
How ironic is it that one of my favorite bands is Life of Agony? Never in a million years would I think I would end up living a life of agony. I am not just speaking of the physical pain, but of the emotional pain that goes along with suffering …Read More »
All I want for Christmas is… a new body!
So the holidays are here again! Everyone is excited, running around decorating, shopping for gifts and planning their holiday menus. Most importantly they are making their holiday wish lists. All I want for Christmas is a new body! I honestly DREAD the holidays! Don’t get me wrong! I LOVE shopping, …Read More »
Ignorance and Insensitivity Where Do You Draw the Line?
(This blog entry is a fan picked topic…thank you Nicole Bergreen!) Nicole, had shared with me that during her most recent hospitalization, (#7 within 8 months) she had a CNA at the hospital tell her that if she believed in God and prayed hard enough her POTS and EDS would …Read More »
Don’t Judge a Book By Its Cover….
Can you tell someone is a serial killer just by looking at them? Can you pick a millionaire out of a group of people all wearing the same exact thing? The answer to both these questions is a resounding NO! So why is it that people think that to be …Read More »
Your Spouse, Your Illness and You…
For so many of us, getting out of bed is a struggle. Fighting thru pain, physical complications and emotional stress round the clock takes its toll on us for sure but what about the toll it takes on our spouses? One of the biggest lessons I have learned in recent …Read More »
Your Body Knows Best!!
Greetings and Salutations to all my Fight Like a Girl members!! I hope you are all feeling well. I have been a bit under the weather (yes I know you are stunned by this shocking revelation! LOL!). Last week I decided to go to a cardiologist because my blood pressure …Read More »
Dani’s Story (EDS – Ehlers-Danlos Syndrome)
I suffer from EDS. I am both Hypermobility type and Vascular type. Can I get a “WOO HOO!” for winning the dysfunctional genetic lottery? LOL! It is a horrible disease; the Hypermobility type caused me a great deal of pain. I suffer from numerous subluxations and dislocations. Every joint is prone to it. I have intense pain, swelling, skin discoloration etc…I am hypersensitive to barometric pressure changes and can predict weather better then any meteorologist I have ever seen on TV!Read More »